My Endocrinologist has put me on a 3 month trial of liothyronine my G.P has refused to prescribe it. I challenged this with the practise manager and was told today that the CCG say the endo has to prescribe it not the GP. The Endo can only prescribe 2 weeks supply. I have been on T3 for 2 weeks and I already feel much better on the combined 125 leviothyroninr and 10 mcg liothyronine.
I am devastated that I can't continue on this medication as my body is awash with T4 which doesn't alleviate any symptoms. I am devastated to learn that I will have to pay privately as im.a single mum now working p/t as I was forced to cut my hours due to symptoms-paying for liothyronine is beyond my means (UK prices)
My question is what to do ??? Does anyone else get liothyronine from the gp after it's initiated by the endocrinologist? And if not where do you get it from ? Anyone have any reliable source of T3 abroad ??? Thinking online sites? Please message me privately asap ... I'm just looking at all these sites with steroids and I'm worried that I'll be taking something that's not safe .. thank you I really need help here I feel devastated to have found something that works but then having it taken away .
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maeflower
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My endo recommends T3 for me and my GP refused to prescribe. I now have it on NHS prescription but only after formally appealing to the CCG. After many calls, letters and GP appointments to CCG, medical management and even MP, I now get it on the NHS (no one would accept responsibility and kept saying the other said no). Good luck and keep pushing.
Spoke to my CCG today they are insisting that the endocrinologist prescribe for the 3 months of the trial then they say the GP WILL continue to prescribe if a clinical need is demonstrated - so back to the endocrinologist .. really shouldn't be this hard to get the right meds. Until you've suffered like this it's hard to understand how difficult it is to fight the system when you can hardly get up in the morning !! Thank you for your advice . The Facebook group is full of good info and the letter templates are excellent .
I am going to fight this... It's an injustice that drug companies are allowed to monopolize drug supply to the NHS resulting in sufferers being forced into T4 only treatment which is not suitable for all of us .
You as the patient should not be caught up in a squabble between the CCG, practice and hospital over who pays for your drugs. Threaten to make a formal complaint to the GMC if your GP does not prescribe the Liothyronine even if it is a trial to establish clinical need.
CCG does not have the authority to tell GPs what not to prescribe. If you have been told by a NHS specialist you need a medication and your GP refuses to prescribe it your GP may be in breach of the GMS contract by withdrawing treatment you have been told you need.
CCGs do not have the authority to tell GPs what not to prescribe. Individual GPs, not CCGs, could be found in breach of the General Medical Services contract if they do not prescribe treatment patients have been told "they need".
The GPC has warned that GPs would be in breach of the GMS contract and could get into legal trouble by following the orders and refusing to prescribe patients treatments they have told them they need.
CCGs are expected to do impact consultations with the public and stakeholders before implementing change. Failure to do so leaves them open to legal challenge so check whether your CCG did an impact consultation before advising your GP to withdraw T3.
30.11.17 NHSE Board Paper, findings from NHS Consultation said: "The joint clinical working group therefore recommended the prescribing of liothyronine for any new patient should be INITIATED by a consultant endocrinologist in the NHS, and that de-prescribing in ‘all’ patients is not appropriate, as there are recognised exceptions. The recommendation would therefore be changed to advise prescribers to de-prescribe in all appropriate patients."
So they meant an endo can initiate, which means a GP can subsequently prescribe.
But of course they try to make their own rules as they go along....
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