I am posting this as a separate post from my earlier thread Liothyronine under threat, which attracted much interest.
Update. Have been rung by the surgery today to say that they have made the decision no longer to prescribe liothyronine. They can refer me to a private endo and of course that means I shall have to pay. I have an appointment to see them next week but it will simply be to inform me, not to offer any other solution, despite the fact that I can't tolerate levo.
I'll report back after I've been and after that I guess it's letter to CCG, MP etc though none of it will do any good. To say I am appalled would be an understatement. I feel vulnerable and anxious, not yet knowing whether they will undertake any thyroid care once I am no longer on medication they prescribe. Utterly devastated that they can say they will refer me privately (at a rough cost of £8-10k per annum at UK prices including endo consultations) What happened to NHS free at the point of need? In my case, I cannot tolerate T4 but they offer nothing else. Yes, I know that I can obtain meds from abroad but a) why the hell should I have to and b) that isn't my choice unless I must.
More news as I get it.