Hi, Me again 👋 Sorry to post again this is my little safe place during this fight.
Basically my old Doctor told me to Stop Levothyroxine because my TPO Antibodies were High and TSH low. You can see previous results if you look on my profile at old posts well I got a new Doctor and they put me on 25mg and I got my recent test results.
They didn’t test my TPO but did T4 and TSH and I cried mostly because what I said would happen has happened look at my TSH now after halfing the dose let alone if I had totally stopped like my previous doctor wanted! Is it OK to admit how absolutely shit Ive been feeling 😳
I’ve got an ultrasound next week and meeting an endocrinologist next month. Just wanted some help to get things sorted as were trying to start a family and nobody until now had taken this seriously!
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MillieMuffin
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I would make a complaint to your previous GP's practice manager. GP should have reduced dose if s/he thought you were overmedicated not stopped Levothyroxine. High antibody levels are not a sign of overmedication. That GP needs some re-education.
It's not surprising you've been feeling awful. Your dose needs increasing from 25mcg. GP could increase to 75mcg - 100mcg. There's no need to retest TPO if you've previously had high results.
You should consider delaying starting a family until TSH and FT4 are normal as high TSH and low FT4 increases the risks of developmental damage and miscarriage.
The TSH of women planning conception should be in the low-normal range 0.4 - 2.5. When pregnancy is confirmed dose is usually increased by 25-50mcg to ensure good foetal development. NICE also recommends that hypothyroid women planning pregnancy should be referred to endocrinology. cks.nice.org.uk/hypothyroid...
Management of primary hypothyroidism: statement by the British Thyroid Association Executive Committee
13. The serum TSH reference range in pregnancy is 0·4–2·5 mU/l in the first trimester and 0·4–3·0 mU/l in the second and third trimesters or should be based on the trimester-specific reference range for the population if available. These reference ranges should be achieved where possible with appropriate doses of L-T4 preconception and most importantly in the first trimester (1/++0). L-T4/L-T3 combination therapy is not recommended in pregnancy (1/+00).
Your Doctor is obviously ignorant about the thyroid. Your TPO antibodies are high because you have autoimmune thyroid disease (Hashimotos), not because you are overactive. Your TSH is low because you are on levo or because your dying thyroid just dumped extra hormone into the blood stream (Hasi flare). What matters is your free T4 and free T3. You need to see another doctor with a clue as this one is making you very ill. Often being gluten free and supplementing selenium can help stop flares as can keeping TSH as low as possible!!!
It makes so much more sense when people explain it like this with regards to dumping the extra Hormone, Why can Doctors not understand that! It makes so much more sense seeing it written like that would explain my last results. I had been driving myself crazy I have one Doctor saying 50mg is too much medication and another saying 25mg is not enough medication yet nobody has explained why or what might be happening!
I have had an Ultrasound today which has confirmed my Thyroid is very inflamed.
My TSH was 0.05 the months before these results this is why she said it was low and wanted me to stop medication claiming I was Just over medicated. The new Doctor ran bloods and that is when it came back 72.91 because my old Doctor seems to be a total idiot. I actually hate her, Infact I cannot explain my hate for my previous doctor almost 2 years of being fobbed off and told to come back in 6 months to SEE WHAT HAPPENS. The final straw for me was when she told me to Just stop taking any medication for 6 months to see what happens... I think she is trying to kill me off with that sort of a suggestion!
If it was not for groups like this, I would think to trust her and think she was right! Instead it's always made me question her actions and I am disgusted with the way she has treated me and I am going to make sure a complaint goes in. When I first started getting a nasty cough and sore throat and her outstanding advice was "Oh well, try to take your medication with Yogurt to sooth your throat"....
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Help with test results after increasing Levothyroxine
Blood tests after a trial of Levothyroxine
Latest blood results after taking 100mcg levothyroxine 
Can anyone tell me what these blood results show?
Antibodies blood tests.
