I got kicked off FB Group FTPO: For posting a... - Thyroid UK

Thyroid UK

141,243 members166,489 posts

I got kicked off FB Group FTPO

Kell-E profile image
37 Replies

For posting a chart of equivalent doses of NDT to Levo.

Oh God, I have offended the draconian powers.

I even said I would write on the chalkboard a thousand times, 'I will toe the STTM party line..'

Okay, that's what I probably got kicked out for, lol. But it was worth it :)

Written by
Kell-E profile image
Kell-E
To view profiles and participate in discussions please or .
Read more about...
37 Replies
Framboise profile image
Framboise

Better off out of it I reckon, unfriendly group that one. I read it occasionally but have never posted anything for fear of saying the wrong thing and incurring their wrath ;)

Kell-E profile image
Kell-E in reply toFramboise

I didn't spend much time there, but it was specific for people without a thyroid, so I thought it MIGHT have some useful info. Zilch. And I got my knuckles slapped for implying that anyone would start out at anything but 1 grain. Um, thanks, but I wouldn't really want to go hypo for their most sacred one-size fits all protocol!

And the moderator spends all her time slapping ppl for using the 'reply' feature and insisting ppl post in the comments part only. So when she deletes their posts it probably isn't as obvious, lol, because the whole 'discussion' was completely disjointed anyways...

Treepie profile image
Treepie

Whats Facebook? !!!

Kell-E profile image
Kell-E in reply toTreepie

I only said FB, so obviously you reveal that you do know...lol :)

Treepie profile image
Treepie in reply toKell-E

Got me ,but I avoid all social media ( unless this is) despite being told how good twitter is for a hobby I have.

Kell-E profile image
Kell-E in reply toTreepie

I really do not like FB. I have an account but only because you need it sometimes to looks at certain things. It is so convoluted and I never know exactly what I'm looking at. Posts and re-posts and likes and whatever, seems almost designed to obscure what you are sharing or at least with whom you are sharing it. It attempts to force people together via social pressure. I do like Instagram because I love photography, but it worries me that FB owns it. Yikes....

Would you post it here? More people who know there is an alternative to Levo the better!

Kell-E profile image
Kell-E in reply to

Here you go. This is the chart that got me in trouble. There are other charts as well and they are only a general guide. But this one is so much better than the lame manufacturer equivalence charts.

restartmed.com/wp-content/u...

trelemorele profile image
trelemorele in reply toKell-E

Ooh.... I like that chart. You have thumbs up from me!

Someone (or was it you) mentioned the same chart couple weeks ago and I took a screenshot for future reference.

Good job kell-e.

What's fb group link so I can have a sneaky peak what's that all about?

Kell-E profile image
Kell-E in reply totrelemorele

I can't take credit for the chart, it is from another site and has been posted here a bunch. I just like it, as it seems more realistic than anything I've seen.

Here is the FB group link. Join and spy for me!

facebook.com/profile.php?id...

trelemorele profile image
trelemorele in reply toKell-E

😉 great

Will see if they accept me to join in. Had to answer 3 questions first.

Thanks

Kell-E profile image
Kell-E in reply totrelemorele

Just don't say that you know me or they def won't let you in :)

Kell-E profile image
Kell-E in reply totrelemorele

Did you gain access?

trelemorele profile image
trelemorele in reply toKell-E

No they still didn't approve.

Kell-E profile image
Kell-E in reply totrelemorele

The MOD is on this board also, so she probably read this thread.

trelemorele profile image
trelemorele in reply toKell-E

Aha, there you go lol

Should have said that form the begging and continue this on PM 😀😂

Well, then time to pack up my toys from one hostile sandpit and play in someone else's - right?

She's just proved how useless they must be if they're willing to exclude people from peer to peer group.

Kell-E profile image
Kell-E in reply totrelemorele

Sorry, I didn't realize it for a few days after I posted. Then I saw the face in a post. Oops. I did PM you though...just now...

trelemorele profile image
trelemorele in reply toKell-E

Oh I'm not missing on anything. This was pure sarcasm about the sandpit 😉

Just wanted to have a look what sort of interesting discussion they have. Obviously nothing worthy if they don't want to share it with the world.

Yup, got your PM.

Kell-E profile image
Kell-E in reply totrelemorele

I didn't mean sorry that you were missing out on anything. Just sorry you had to waste your time whereas joining was probably doomed from the start. She blocked me from all FTPO groups too, lol...

trelemorele profile image
trelemorele in reply toKell-E

I can assure you she doesn't have monopoly on all Facebook thyroid groups and there is plenty of them there to chose from. 😉

Kell-E profile image
Kell-E in reply totrelemorele

Of course. But the FTPO for thyroid, this, that, and the other thing are evidently tied together.

trelemorele profile image
trelemorele in reply toKell-E

The connection between FB groups and this one is the people only - people who are either members or admins or both on few, couple.

Facebook groups have no influence on this forum and the other way round apart from common denominator- it's members.

There's a member on here I've seen on the other group - not facebook though - this person talks the same bs on both sites, hence positive ID, but there's no connection between either of those sites apart from few members involved in those two groups at the same time.

Kell-E profile image
Kell-E in reply totrelemorele

I guess I meant that the same admins run several FTPO named groups, because I went to click on another hormone one and it gave me the message that it was not available to me.

trelemorele profile image
trelemorele in reply toKell-E

Yeah that were my thoughts. But how many groups can one person physicall manage during 24h/day assuming they don't work and have nothing better going on in their life?

As for me, I left highschool millions years ago, things like refusal to be accepted in a group - don't get to me at all and I quickly move onto something else.

Life's too short

I have 99 problems but a b... ain't one 😂😉

Kell-E profile image
Kell-E in reply totrelemorele

Pfffft! Maybe they have a network of NO-THRYOID-FOR-U Nazi Mods...I am such a conspiracy theorist, lol...

Kell-E profile image
Kell-E in reply totrelemorele

FTPO....doesn't that stand for 'For The Pleasure Only'?

The pleasure was all theirs, lol.

Kell-E profile image
Kell-E in reply totrelemorele

I told you she was watching :)

ShinyB profile image
ShinyB

Trouble-maker! ;-)

Kell-E profile image
Kell-E in reply toShinyB

You know me too well :)

BadHare profile image
BadHare

Bum! :(

Thought STTM was pro NDT!

Kell-E profile image
Kell-E in reply toBadHare

STTM is pro NDT. I don't know how closely tied this FB group and STTM actually are. I know that the group subscribes to the STTM thinking, but they seemed very rigid.

Someone asked about equivalencies to Levo and the Mod shot down any possible equivalents, claiming that there are none. And insisting that everyone begin on 1 grain, thyroid or not. The Mod seemed all about the power.

I'm glad to have been kicked off.

BadHare profile image
BadHare in reply toKell-E

Not the only t'interweb admin I've come across that's power crazed &/or ignorant!

Dunning-Kruger effect!

Kell-E profile image
Kell-E in reply toBadHare

How do we tell that we don't suffer from it? lol

BadHare profile image
BadHare in reply toKell-E

I usually spot when I've written something really really stupid, slightly too late. Some people will never notice, even when confronted with their error. :)

Kell-E profile image
Kell-E in reply toBadHare

Unfortunately, I have met many who fall into the latter category.

bobbyb profile image
bobbyb

I find a lot of the trolls on FB groups really nasty and disruptive. It always goes off on tangents with people bickering. I don't use it now. I remember a Woman asking for help with her child on one forum and she got a nasty reply. I told her to go on this forum instead. I found the original sttm forum quite useful but when they FB changed the format I cancelled it. Me and my problematic thyroid was the first one I joined. Don't think it exists now.

Kell-E profile image
Kell-E in reply tobobbyb

The only nastiness I saw was by the MODs. But I wasn't there long enough to get a full picture. I simply posted what I thought was a helpful suggestion and got blasted and told I should do more reading on the STTM web site. Which I went back and reread the part about starting NDT. Nope she was wrong. It wasn't as rigid as she was being.

Not what you're looking for?

You may also like...

I got T3! I got T3! I got T3! I got T3!.... ... OK, calm down, and ... breathe! :-)

As you've probably guessed, I'm a tad over-excited because I saw my NHS Endo yesterday and after...
RoloHibbs profile image

off topic, before my thyroid got sick

i have a weak thyroid since l'm in my 20s, i know because it is in my mother family. the doctor...

Re Devon and South West England Thyroid FB Group - name change!

Hiya I just wanted to update you all on the Devon Thyroid Group which now has 210 members! Ive...
JaneChapple profile image

I got T3

Went to Asda,bad idea.No T3 don't know when they will have it. Have the groceries I wanted we not...
beaton profile image

Should I taper off NDT?

I have searched and read in this forum (and elsewhere), but cannot find much information on how to...
Whippets88 profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator
Jaydee1507 profile image
Jaydee1507Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.