Feeling more supported

8 months ago•5 Replies

Hi all

Yesterday I had a review with my GP after receiving my first loading doses of B12 and high dose Vitamin D supplementation.

There was a very different response when I said that although there had been some improvement, my life of feeling unwell had not changed dramatically. After a long discussion we agreed to repeat bloods for full thyroid function + vitamin support in April - meanwhile to screen for gut absorbtion problems and then consider a change in Levo dosage (increase). I was so relieved I nearly cried.

She agreed that I have so many health issues going awry at the moment but at the end of the day she has a patient sitting in front of her with very uncomfortable symptoms and she has to treat those as well as taking note of pathology. Hooray!

Things can only get better - I hope!!

Regards HypoT

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SlowDragonAdministrator

8 months ago

They should not have reduced your dose from 150mcg to 125mcg

Official NHS guidelines saying TSH should be between 0.2 and 2.0 maximum when on Levothyroxine

See box

Thyroxine replacement in primary hypothyroidism

pathology.leedsth.nhs.uk/pa...

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor   please email Dionne at

tukadmin@thyroiduk.org

Professor Toft recent article saying, T3 may be necessary for many Otherwise we need high FT4 and suppressed TSH in order to get high enough FT3

rcpe.ac.uk/sites/default/fi...