Unseen post...: Hi, just wondering if my previous... - Thyroid UK

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Lisas_tired profile image
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Hi, just wondering if my previous post has been seen regarding Sjogrens/Lupus?? Just checking this is on the feed... thanks x

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Lisas_tired
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Clutter profile image
Clutter

Lisas_tired,

There are no answers to it yet.

healthunlocked.com/thyroidu...

Lisas_tired profile image
Lisas_tired in reply toClutter

Hi clutter, that’s what I was confused about, on past posts, they’ve gotten replies pretty much straight away so was wondering if it has been posted/seen xx

Clutter profile image
Clutter in reply toLisas_tired

Lisas_tired,

It has been posted but not yet, perhaps, seen by people with Lupus and Sjogrens who may be able to help. If you've not had any replies by Monday feel free to repost your questions.

Lisas_tired profile image
Lisas_tired in reply toClutter

That’s ok, Thankyou 😘😘

Silver_Fairy profile image
Silver_Fairy

Are you a member of Lupus UK on here? They may be able to help more.

Lisas_tired profile image
Lisas_tired in reply toSilver_Fairy

Oh I’ve only come across lupus Australia 🤦🏼‍♀️ that’s all that was coming up, thanks, will have a looksie now xxx

Silver_Fairy profile image
Silver_Fairy in reply toLisas_tired

healthunlocked.com/lupusuk

shaws profile image
shawsAdministrator

This is re:

healthunlocked.com/search/s...

CarolineC57 profile image
CarolineC57

I've just looked at your other post, Lisa, and as well as the lupus forum which has been suggested to you I'd also suggest trying NRAS on here. They deal mainly with rheumatoid arthritis but also have members with sjogren's and lupus.

I've been tested for both myself since I've got all the dryness problems you talk about too, but in my case my ANA came back negative, and a lip biopsy they did for sjogren's was also negative, so they're saying "no" to me at the moment. Personally, I think I do have something like this though since I have all the symptoms and RA runs in my family.

Good luck in your search for answers. I, too, am still seeking answers - and, hopefully, some suitable treatment.

Lisas_tired profile image
Lisas_tired in reply toCarolineC57

Aww thanks Caroline xx appreciate your response xx Hope you find some answers too x

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