Hi all ,
It's been around three years since diagnosed hypo, and after starting on levothyroxine and enduring the NHS approach I moved to thyroid -s fairly quick.
I am sure most would agree , blood hormone levels are controversial and can be confusing , with many people told they have normal levels , accepting this and continuing to feel hypo. Of course there is always the issue of continuing decline in thyroid function and output , and the Hashimotos disease itself making us feel ill and contributing to the swings in levels , but for me , raging hypo symptoms told me there was a need for more hormone despite what the outer world said .
Since moving onto thyroid -s I have had numerous blood tests at various doses. I have been on a dose of 3 grains with normal or slightly high hormone and low tsh levels, but more recently I climbed to 6 grains with still low TSH , and lowered , mid range t4 and t3 .
I have come to my own conclusion about what is happening with me. What I have witnessed overall is that my body does it's best to function with the hormones it has , and after years of trying to survive with very little , it doesn't take much of an increase for it to think it has an excess or that the gland has dumped too much again due to the hashi's. Basically the body is being rationed to not enough , and enough is considered an excess and not immediately taken up - until it has been received long enough for the body to know it can depend on it .
However , if instead of cutting the dose ( as ordered by alarmed doctors ) when after 6 weeks the bloods come back as hyper (high levels ),if I continue on that dose , I find the blood hormone levels come down over time, even though the tsh may stay the same .
So , as I understand it , what is needed by the body isn't what is used first off when starting meds.
As a layman , maybe the body has adjusted to stop taking up the hormone due to the deficiency , and the TSH goes low because there is more hormone than the body wants to take up , even though it does need more.
What I have noticed is the improvement in the dry skin , hair loss, sleep etc.
My symptoms were terrible on 3.5. grains , and with a tsh 0.01 was told by doctors you're too high.
I have ignored them , my skin is better , my hair is better , I am better , but still a bit to go.
Been far enough to know which way is the wrong direction.
P.s on holiday I Cambodia , Blood tests cheap - $23 for t4 , t3 , tsh and cholesterol