T3 (Wilson's Temperature Syndrome)

[Cuileann-6]

Hi there, I've found a company in uk who seem to sell T3. I was thinking of trying T3, as Thyroxine didn't seem to help. I since read an article about Wilson's temperature Syndrome wilsonssyndrome.com/ which made a lot of sense to me. My symptoms and blood tests certainly fit. My question is a/ has anyone else bought from <redacted website>? and what is a good starting/maintenance dose? thanks so much :0)

[ Edited by admin to remove name of website.

24. Do not post advertisements, links or information of any sort whatsoever, on where or how to obtain UK prescription only medications without prescription. This includes online pharmacies who issue 'prescriptions' on the basis of the completion of a simple health questionnaire.

healthunlocked.com/thyroidu... ]

[helvella Administrator]

Cuileann-6,

Any UK company that sells T3 without a prescription is breaking the law. You should, perhaps, ask some questions - such as:

Is it really T3?

Do you trust them to supply what they claim?

Do you trust them in terms of delivering what you pay for?

As you think of them as a UK site, but they are actually based in Bulgaria, they have clearly already started to mislead people.

[Cuileann-6 in reply to helvella]

thanks Helvella! That's terrible isn't it. We're so vulnerable, especially when there's no help forthcoming via a GP. thanks again :0)

[helvella Administrator in reply to Cuileann-6]

Cuileann-6,

I agree.

I hate the exploitation of us all.

[Clutter]

Cuileann-6,

Wilson's temperature syndrome is not a medically recognised condition. Dr. Dennis Wilson was struck off after one of his patients had a fatal heart attack after following his high dose T3 protocol.

If you want T3 sources write a new post asking members to send you the information via private messages. If the supplier site claims to be in the UK they are probably lying. Anyone selling T3 in the UK without a prescription is breaking the law.

[Cuileann-6 in reply to Clutter]

Thanks Clutter, it's so misleading and I have so much going on health wise (I have FND and a heart condition too) I shall put up another post. Thanks again :0)

[Clutter in reply to Cuileann-6]

Cuileann-6,

If you want advice on dosing you should include recent TSH, FT4 and FT3 results and ranges.

[Cuileann-6 in reply to Clutter]

my results are about 8 months old, so I guess I'm gonna have to do some more before treating myself..... but then they were:

TSH 3.50 (0.27-4.20)

T4 total 80.3 . (64.5-142.0)

Free T4 17.13 (12-22)

Free T3 . (4.31)

Reverse T3 (HIGH) 25 . (10 -24)

Reverse T3 ratio (LOW) 11.22 . (low <12)

I've been preoccupied as collapsed shortly after these and diagnosed with Functional Neurological Disorder, which I've had for 40 years but was diagnosed incorrectly as having ME. I also have been trying to treat Adrenal Fatigue stage 3D (both blood and saliva tests were abnormally low and flagged)

But I am now trying to make a plan to treat all systems really gently. So, I'm going to start taking Pregnenolone and DHEA (Also low on that) I have advice regarding that. I did start on thryoxine, self-treating with guidance, but was convinced to come off again whilst NHS diagnosed me. I didn't dare try anything until now, as I have been so ill, bed-bound with seizures this time.

Any guidance would be greatly appreciated. I know many sufferers use T3 rather than Thyroxine....?

Thanks so much for your time Clutter! but please don't feel you have to reply.... I'm sure you have enough on your plate :O)

[Clutter in reply to Cuileann-6]

Cuileann-6,

TSH 3.50 indicates your thyroid gland is failing but FT4 was good at just over half way through range. I would recommend retesting to see how levels have changed before self medicating. Blue Horizon Thyroid Plus 11 or Medichecks UltraVits will be sufficient. You don't need to go to the expense of testing rT3. thyroiduk.org.uk/tuk/testin...

If you have adrenal issues it is best to start treating them before thyroid. It is easier to dose with Levothyroxine than T3 and most people do well on Levothyroxine.

[Cuileann-6 in reply to Clutter]

Wow, this is incredible advice, thank you thank you thank you! You've answered all the questions swimming around in my brain. I wondered about which to treat first. I shall re-test, thanks for the link too. Can't thank you enough :O)

[Angel_of_the_North in reply to Clutter]

However, some foreign companies have UK websites dedicated to pricing in GBP and shipping (from wherever) to the UK. They may say that they are dedicated to UK customers or similar but usually they don't actually say "We are based and incorporated in the UK and ship from the UK"

[helvella Administrator in reply to Angel_of_the_North]

Angel_of_the_North,

At least one does its very best to obfuscate and claims that products ship from their warehouses - which include UK and non-UK locations. They never quite claim that a specific product ships from the UK but leave you to think that is the case.

[Angel_of_the_North in reply to helvella]

Of course, they can re-ship from their Uk warehouses as long as the product started off somewhere else (or they are not technically a UK company). Does it really influence people? i suppose they'd expect to get things more quickly. I used to get stuff (not thyroid) from a British company in the Caymans who re-shipped popular items from a location inside the UK.

[helvella Administrator in reply to Angel_of_the_North]

Angel_of_the_North,

I think people do indeed feel more comfortable with what is ostensibly a UK company.

Not sure that I do!

[Angel_of_the_North]

They won't be in the UK if they are selling real T3 as it is illegal to sell prescription meds without a prescription. They might have a .co.uk website and even be registered at Companies House, but, if so, they'll be in be in the Bahamas or somewhere similar, or not in a Uk territory at all. Or it is not T3.

[Cuileann-6 in reply to Angel_of_the_North]

thanks Angel of the north :O) Aye, Some members have suggested trusted online sites. So many charlatans about! thanks for replying :O)