T3 please

[Xarac]

I am new T3 taken away in August how do I get hold of more thankyou

[Hidden]

It would be best if you could provide some info on your medical situation if you would like some input. Are you in the UK?

[Xarac in reply to Hidden]

Taken away in August 2017 on no levo diagnosed 2013 in uk thankyou

[Clutter in reply to Xarac]

Xarac,

Can you post recent thyroid results and ranges and say what dose T3 you were taking at the time. Weren't you offered Levothyroxine when T3 was withdrawn?

[Xarac in reply to Clutter]

Thankyou 175mcg levo was taken away August 2017

Sep 2017 175mcg levo and 10mcg T3

TSH <0.02 (0.2 - 4.2)

FT4 20.8 (12 - 22)

FT3 5.6 (3.1 - 6.8)

Nov 2017 175mcg levo and 10mcg T3

TSH <0.02 (0.2 - 4.2)

FT4 20.5 (12 - 22)

FT3 5.3 (3.1 - 6.8)

Jan 2018 no levo

TSH 5.66 (0.2 - 4.2)

FT4 14.8 (12 - 22)

FT3 3.0 (3.1 - 6.8)

[Clutter in reply to Xarac]

Xarac,

Why was Levothyroxine and T3 stopped after November? Was it GP or endo who stopped them?

You clearly need thyroid replacement as Jan TSH is high, FT4 low in range and FT3 below range.

[Xarac in reply to Clutter]

Thankyou T3 stopped in August 2017 because endo said I have no need for it. Levo stopped dec 2017 because I was getting sweats

[Clutter in reply to Xarac]

Xarac,

FT3 was good in Sept and Nov so endo may well have been right.

Who stopped T3 in Dec?

[Xarac in reply to Clutter]

Endo

[Xarac in reply to Clutter]

Sorry T3 stopped Dec 2017

[Clutter in reply to Xarac]

Xarac,

Your endo was a fool to take you off 175mcg Levothyroxine after stopping T3. Dose adjustments are supposed to be in 25mcg increments at six weekly intervals with followup thyroid tests to check levels.

You clearly need thyroid replacement so you must discuss the results with your GP or endo, whoever you can see first, to have Levothyroxine reinstated.

[SlowDragon Administrator in reply to Xarac]

Sweats highly likely to be due to extremely low vitamins after T3 withdrawn

[SlowDragon Administrator]

How long have you been without any Levothyroxine

You can be really really unwell.

Did you stop it? Or your GP

Either way you need to restart urgently.

Depends how long not taken any as to how much you can tolerate to restart.

You were extremely under medicated at last blood test

Highly likely to have absolutely dreadful vitamin D, folate, ferritin and B12

These will need improving by significant supplements

Post results if you have them or get GP to test ASAP

You will need to get Levo dose back up, vitamin levels optimal before adding T3 back

T3 removed advice on how to fight it

healthunlocked.com/thyroidu...

Why T3 should not be stopped

healthunlocked.com/thyroidu...

Typical posts after T3 stopped showing how vitamin levels crash

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Presumably you have Hashimoto's also called autoimmune thyroid disease diagnosed by high thyroid antibodies

If so you may need to look at gluten intolerance too

[Xarac in reply to SlowDragon]

Thankyou been without levo for 1 week. Endo stopped it and I have TPO antibodies 277 (<34) TG antibodies 255.4 (<115)

[Clutter in reply to Xarac]

Xarac,

If you have only been without Levothyroxine for one week you must have been undermedicated in Nov or Dec. It takes longer than a week without Levothyroxine for TSH to rise and FT4 and FT3 to drop so much.

Thyroid peroxidase and thyroglobulin antibodies are positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

[SlowDragon Administrator in reply to Xarac]

So your endo stopped it after your January results show TSH of 5.66

That's utter madness. You are seriously under medicated

See your GP urgently

Ask your GP to retest vitamins ASAP

Personally I would NOT stop Levo

Endocrinologist probably a Diabetes specialist.

You need a new endo.

Email Thyroid UK for list of recommended thyroid specialists

email Dionne:
[e-mail]

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

please email Dionne:
[e-mail]

Prof Toft - article just published now saying T3 is likely essential for many

rcpe.ac.uk/sites/default/fi...

Thyroid UK are collecting evidence of malpractice due to removing clinically needed T3

Please consider sending a brief outline of this. How T3 improved you and the subsequent disaster since it was stopped. I would include the low vitamin levels assuming you have them

thyroiduk.org.uk/tuk/get_in...