I am new posting on behalf of my 28 year old daughter. She reduced her levo from 175mcg to 25mcg and she was diagnosed hypothyroid in 2011. Please help I am at the end of my tether as to whether she will ever get better.
TSH high
FT4 normal
FT3 normal
Thank you
A reduction should never be so big ,25mcg at a time is right.
Best if your daughter posts her latest blood test results with the ranges ,which are shown in brackets, and includes folate,ferritin,D3 and B 12.
Normal is not necessarily optimal ! Do not rely on words like " normal" ,"high" ,you want the actual results.
She will then get some considered advice.
Shall I ask her to post on this thread?
Put them on a new post with the results along with the ranges.
The doctor is very negligent to reduce her levothyroxine so severely. I have read quite a few posts over the past weekend with similar stories and it is so very wrong to adjust doses other than reduce (or increase)25mcg every 6 weeks.
Your daughter must be very unwell indeed and it all falls upon the GP.
When you post results you always have to put the results with the ranges. Ranges are important as labs differ and it makes it easier to respond.
She needs TSH, T4, T3, Free T4, Free T3 and thyroid antibodies. B12, Vit D, iron, ferritin and folate.
The thyroid ones the doctor or lab wont do you can get them from one of our two private labs. They are home pin-prick tests.
Never accept the word 'normal' from a doctor or endocrinologist. We don't want normal, we want optimal and optimal means we feel well with no clinical symptoms.
I'm sorry your daughter is having such a hard time. Thyroid disease is very poorly understood by doctors. Neither do they understand how thyroid hormone works or what makes patients feel ill. Neither do they know how to help us get better and stay well. If your daughter relies on her doctors to get her well then she will probably stay sick forever as most of us on this forum have discovered. However, she can get well again if she learns how to do it herself with the help of this forum.
Levothyroxine should not be altered by more than 25mcg at a time (50mcg at the very most as urgent measures). Altering levothyroxine by more than 25mcgs makes us fell ill. For me, I can only tolerate 12.5mcg dose change at the most and even then I get symptoms.
It sounds like your daughter probably has autoimmune thyroid disease. If she has blood test results then ask her if she'd like to post them here along with lab ranges and any antibodies tested because experienced people will help her to understand them and decide how best to address her symptoms and stay well.
She could read some of the success stories on this site to give her hope and confidence that she can live a better life with this disease.
With autoimmune thyroid disease, antibodies activity can raise thyroid hormone, temporarily reducing TSH levels. Doctors don't understand it and they panic and tell the patient to drastically reduce their dose which makes the patient feel even sicker and then takes along time to get back on the right dose again after the high antibodies settle down. They generally settle on their own and usually FT3 and FT4 are in the normal range despite low TSH. As doctors rarely test these hormones they don't have a clue how the main thyroid hormones work or what is really going on in the patients body.
Everyone here will help if you can invite her to join the forum and post her blood test results.
She had posted her bloods thanks
Where did she post her bloods? I can see some high, low etc but to give good help we need the actual numbers and the lab ranges to really give accurate and detailed help. Lab ranges vary and what doctors call high or low may be normal for us.
Help with results please.
HELP PLEASE
Please Help
tests please help!
Pure miserable!! Please help!!
