Thyroid UK
87,575 members102,287 posts

advice on Levo dosage and Hashimoto I need help !!!

Hello again it is me here...in last post I wrote I had severe constipation due to my hypo symptoms extream eye pain .On 12.12.17 had my bloods done :

Serum TSH 18.07mU/L (0.3-5.5)

Serum free T4 8.3pmol/L(12.00-22.00)

My private endo told me that it is thyroiditis (he didn’t see 12.12.17 results as he is on holiday ) and he said it should settle down itself and I should stop Levothyroxine.I tried to ring to his secretary and explain my symptoms again and again she said she can’t do anything as he is abroad but will tell him once back.

I ended up in hospital had palpitations felt dizzy hands cold tingling etc they said I have to go back to gp and it is thyroid related .

So I went back to gp on 27.12.17 and he showed me these results from 12.12.17 and said I have to start at least on 25mcg now but I have to start on something due to my symptoms and blood test.He prescribed me 25mcg and I started since.Than on the same day he said go and do bloods check again TSH .i told him to check my antibodies too and thyroglobulin.i insisted him even he didn’t want to.

I went back home after couple of days I had sharp pain in my left side stabbing pain twice for 10min at work so I went home I was so scared I called ambulance as I never had this before.My hair scalp is full of flaky skin around ringing in ears continuously depression crying all the time pressure in my eye balls and sides of my head and back of my head confusion memory loss etc.so I went back to gp emergency appointment same day as no point to wait in hospital for 4hrs and go back home.I been in hospital they will tell me thyroid issues blah blah blah and go home or gp.So went to my gp and he looked at my bloods which I did on 27.12.17 which were:

TSH 44 .44 mU/L

Serum free T4 7.6pmol/L

TPO 344.6 iu/ml (0-50)

thyroglobulin-no cancer .

Notes:Hypothyroidism

I had such emotional day at gp I couldn’t atop crying he said your antibodies are attacking your system and u need urgent medication.Your eye pain constipation bloatines is all symptoms of hypothyroidism so he put me on 75mcg.

Please I want to say everyone who will comment on here that I want only just positive messages with things what should I do now at this low point of my life.I am to the point I want to kill myself and cry to death.iam so scared now .i can’t sleep iam crying battling with myself .Endo also didn’t do anything in this matter totally 0 .I used to be on 50mcg but it was too high in 4 weeks I was from hypo to hyper I had huge palpitations my hair fell off had muscle pains and aches all over the body eye lids plumbed up and swollen etc I ended in hospital .So bloods showed it came that iam overmedicated.I have been on 25mcg now for 11days and on appoitment on 04.01.17 doctor told me to start on 75mcgas per my last results.Iam so scared of heart problems also and side effects I took two days 75mcg my stomach clearing out now finally I was a bit happier yesterday but today I took 50mcg as I got scared maybe I should adjust gradually.Can anyone suggest me what should I do! Iam I’m so low point of my life at the moment ...and have nobody to talk

40 Replies
oldestnewest

Hi Ari - I'm not an expert, and there are lots of people here on the forum who can advise you much better than I can as they have more knowledge of this. But I so felt for you reading your post that I had to comment and try to reassure you that something can be done for you. It looks and sounds to me like you're hypothyroid, possibly with Hashimoto's thyroiditis which causes fluctuations in symptoms (and also in the signs - eg. blood test results). The amount of levo you're on doesn't look to me to be sufficient to deal with this. Some people are better with NDT (natural dessicated thyroid) or T3 (the active hormone), or even a T4/T3 combo. But it's trial and error, to a large extent. For myself, I'm on T3 and also a small amount of NDT - but I'm still struggling to find really good improvement, though it has improved me in some respects.

Now, hopefully, those better informed (than I am) people will be along shortly and will be able to advise you, but I just wanted to say there are definitely things you can do to improve things for yourself. Sadly, doctors often behave like there's only one way (ie. levo), but levo doesn't suit everyone so you might find more relief elsewhere.

Anyway, take care - and hang on till someone with more knowledge than me gets here. (((hugs)))

2 likes
Reply

Hi Ari3, I'm so sorry you are suffering such awful depression from your hypothyroidism. I'm still learning re hypothyroidism and am not the best person to answer you in that respect, but it sounds like you have hashimotos thyroiditis where antibodies attack the thyroid gland. I understand a completely gluten free diet can help a lot with that.

Again, I'm not an expert by any means, but I very much doubt that you were ever hyper, as your T4 is so low and your TSH is so high. But I believe Hashimotos can cause a lot of symptoms like palpitations, but that doesn't mean you are hyper, nor does it mean you should reduce your thyroxine. Someone who understands it better should be able to advise you in more detail. I'd suggest that you edit your post to change the title of it to include somethign like 'advice on hashimotos' please so that you get some more detailed, informed replies.

I have suffered dreadfully with depression over the years, so I do understand how you are feeling. I have made use of the Samaritans helpline - they are an excellent service. Although they don't advise you on anything, I've always found the listening service they provide to be very supportive.

As for dosage, my understanding is that a starting dose is 50 mcg unless you are elderly. I can't imagine that that dose would overmedicate you. Do you happen to know the exact test results from when they said you were overmedicated? I'm guessing that your symptoms might be more related to something called a Hashimotos flare. But I'm afraid I don't know enough about that to comment properly.

I'm sorry I can't be more helpful re the thyroid issues - I'm still learning! - but I wanted to respond and reach out to you because I recognise how dreadful it's making you feel.

1 like
Reply

Hi again, there is some information here in this thread regarding hashimotos, including some links on information about it. healthunlocked.com/thyroidu... One of the comments is about what a hashi's flare is: "dying thyroid cells dumped their stock of hormone into the blood, causing your levels to rise temporarily."

1 like
Reply

Thanks for your reply gp didn’t tell me it is Hashimoto.He said there is only Levothyroxine which can help you.I begged for Nhs endo but he said iam the senior doctor and I will look afte you.But when I told him before I found private endo he straight away said ok

Reply

From what I've read of people's experiences on here, a lot of GPs and indeed Endocrinologists don't seem to know the full story on the thyroid. I've learned more on here than I've ever been told by my GP or endo! Also GPs very rarely look at nutrients, which can be totally messed up by hypothyroidism. Have you been checked for nutrient levels, such as Vitamin D, Vit B12, ferritin and folate? Ferritin, for instance, needs to be a minimum of 70 for thyroxine to work properly (that includes the thyroxine your own body produces as well as any thyroxine you take as a medication).

As Caroline mentioned, there are alternatives to levothyroxine, but you are extremely unlikely to get these offered on the NHS - lots of political and financial reasons as to why, and there is campaigning going on to try to change this...

Use the search box at the top to search on 'Hashimotos' and have a read of some of the replies.

1 like
Reply

Thank you so much for your advice .It really helps me when someone is listening and replying to me .Can I get pregnant if i have Hashimoto?Why gp didn’t tell me I have Hashimoto?Can gluten free diet help me and lactose free?What else should I avoid ?Should I start with 50mcg now for couple of weeks and see where iam .I will so other vitamin checks also.Iam increasing chicken liver in diet every week drinking multivitamins omega 3 probiotics .Is it difficult to get pregnant if Hashimoto?Also nobody explained me why I have these kind of issues

Reply

Have a read of SlowDragon's profile, healthunlocked.com/user/slo... which gives some information about her hashimotos. It's not something I have, so I'm not the best person to advise, I'm afraid. You could also take a look at her reply in this post, where she gives useful information and links regarding nutrients etc healthunlocked.com/thyroidu...

Thank you so much for your advice .It really helps me when someone is listening and replying to me .You are very welcome. I totally get that feeling of despair and know how much it helps to feel listened to (one of the reasons I've found the Samaritans so helpful in the past).

Can I get pregnant if i have Hashimoto? Again, I'm not knowledgable enough about Hashimotos to answer much about it. From a general information sense, I'd imagine you'd have much better fertility if you start to address some of the gut issues and reduce the effects of the antibodies in your system. Certainly people do get pregnant with thyroid issues, but it's best to start trying to conceive from an optimal level of health.

Why gp didn’t tell me I have Hashimoto? I don't know for sure it's Hashimotos you have, but am guessing it is, from the little I've learned on here. Others will be able to advise. It certainly sounds like it to me. As for why the GP didn't comment, who knows?!! If you read a lot of posts on here, very few have been fully helped by their GP with any thyroid issues. It's disgraceful!

Can gluten free diet help me and lactose free?What else should I avoid ? Again, hopefully you'll get some more replies from people who know more, or try having a read of the links I've included, or by using the search facility. The consensus on here is that we have to learn as much as possible about the thyroid and take responsibility for our health, as we get so little informed help via our doctors...!

Reply

Ari, I really don't think you want another endo, do you. You saw what the last one was like. The odds are, any other endo you saw would be just the same. He said you had thyroiditis and it would right itself. Well, you do have thyroiditis, but it won't right itself. So, you do need to be taking the levo.

Your GP sounds more clued up than any endo. You should trust him - at least for the time being. If you think 75 mcg is going to be too much for you, then you were right to take 50. That is a normal starter dose. Take it for six weeks, then you can increase to 75 mcg. Did your GP tell you when to go back for a retest? If not, then go back six weeks after you started 75 mcg.

You do have Hashi's, you high antibodies say that. I would therefor advise you to adopt a 100% gluten-free diet. You could also try taking selenium, which you can buy on Amazon.

You said that before, you took 50 mcg and you 'went hyper'. I don't think you did, actually - well, you can't, it's physically impossible to go from hypo to hyper, because your gland isn't functioning on all cylinders. You could be over-medicated, but I don't think you were on 50 mcg. I think what probably happened was your immune system attacked your thyroid - as it does when you have Hashi's - and the dying cells dropped their store of hormone into the blood stream, causing your levels to soar, and giving you hyper symptoms. But, it's only temporary. You are now very, very hypo again, and you need to take the levo.

As for taking something else, it's very doubtful that you NHS will prescribe you anything else. It only prescribes levo. But, as you haven't been taking it for long, you don't know if levo suits you or not. You have to give it a chance to at least bring your TSH down to 1. Then we can talk about other possible treatments, when you're feeling more rational.

There really is no need to be afraid. You are in good hands for the moment, and things will improve as your TSH level decreases. But, panicking will make things worse. Just take a deep breath and continue taking your levo. If other people bombard you with suggestions about you should be taking this or testing that, just ignore them for the moment, and concentrate on the first steps of getting well : taking the level, and changing your diet to gluten-free. You're not well enough at the moment to think about anything else, and it will only confuse you. But, you have to believe that, although it will take time, you will get better in the end. The symptoms will disappear, you'll be able to think more clearly, and you will be able to live a normal life.

So, deep breaths, take the levo, cut out gluten, and smile! :D OK? x

12 likes
Reply

First of all my deep respect for you Grey Goose u are such a lovely person iam literally sitting and crying my eyes out iam so depressed emotional can’t see any end of this ...I will never ever go back to that endo who nearly killed me !and in last report he said that he didn’t see my last results before he went on holidays but he did as his secretary said he saw all results .Ahh I don’t want to talk about that what a waste of time and money £250...anyway yes Iam trying to get myself back now iam on 50mcg at the min for couple of weeks .i saw my gp on 04.01.18 so will have bloods done early February now he gave me already a blood test sheet.just wanted to ask you could you pop me some great websites about Hashimoto thing -fooods not to eat and eat etc.so iam more informative please and start to learn things about it.Is Hashimoto disease for life now or can it be treated? Why is this all happening to me four months ago when I was on antidepressants I never had this but it all started once stopped antidepressants).Can I get pregnant because of this issue!?

Really this site is the best site I have aever come accords.even you could be a doctor ;) u r so great!

The best news is I have started to go to toilet now thanks god! My stomach was like 6 months pregnant so blown up.my face is a bit swollen and ringing in ears is killing me .It has affected my work life my private life I feel iam nothing and I don’t have point to live ....I have never been like this in my life so low that iam going crazy I have forgotten which day it is like time has stopped for me...

Talking about selenium .how it helps and what it does?how much should I use !is it tablet or liquid? Do u have any link I can go and buy it from amazon pls.

I really want to hug u and say huge thanks u are making me so much better already all these people are golden people in here !!!

1 like
Reply

greygoose has made me cry too, twice! In the nicest possible way!

Re the constipation, the best thing I found to help with that is Vitamin C and Magnesium Citrate. Works wonders! And they are good for your health :)

3 likes
Reply

Is magnesium oil spray any good ? I heard this helps ? Any good? Yes greygoose is just not greygoose-wonderful wonderful person on here also everyone else supporting each other in every possible way which is much appreciated!

1 like
Reply

Yes, magnesium oil spray is good. Highly recommended.

Reply

A good cry can do you the world of good! Let it all out. :)

First of all, I don't have any links to anywhere. I lost them all when my last computer crashed, and I haven't bothered keeping any, since that. But, I can probably answer any questions you have about Hashi's.

Unfortunately, that endo is just about typical of most endos. There are a few good ones, but they're hard to find. They are, for the most part, diabetes specialists, and not really interested in thyroid, and they have messed so many people up. I know you spent good money on him, but I think most of us can say the same. I one way or another, we've all spent a lot of our hard-earned cash in the pursuit of improved health, and most of it has been wasted. We live and learn! Just try and forget him - unless you want to write a letter of complaint to his bosses, once you're feeling better? I did that once, and got a very nice letter back, saying he had been reprimanded. Don't know if that helped things for anyone else, but it made me feel better!

I'm afraid Hashimoto's is for the life of your thyroid. There is no known cure. As long as there is thyroid tissue, and a TSH trying to stimulate it, there will be immune system attacks. The best thing to reduce these attacks is to get your TSH to zero, and keep it there. But, as antibodies can cause symptoms, you can try and lower them by going gluten-free and taking selenium.

Selenium is a mineral, which is said to be good for lowering antibodies, and also helps with conversion of T4 to T3. It comes in 200 mcg tablets, and you should take one a day until you've finished the bottle, then have a few weeks rest from it, then buy another bottle. However, as with any supplement, if you find it doesn't agree with you, just stop it.

Apart from gluten-free, there aren't any foods you should be eating, and very few you should avoid. As much as possible you should avoid :

Unfermented soy - soy oil, soy protein, soy flour, etc.

Artificial sweeteners

Too much sugar

Processed oils - rapeseed, sunflower seed, etc.

And processed foods because they contain all of the above.

You need to eat good protein, good fats, fresh fruit and veg, some carbs, not too much fibre, and don't skimp on the salt.

You have probably had Hashi's for a long, long time before it started to make you ill. And it sounds like your first symptom was depression, which is why you were on antidepressants. Coming off antiDs is a problem in itself, and left all the other symptoms free to manifest themselves! It wasn't the antiDs that caused it, nor did they really help it, just masked the problem.

You should be able to get pregnant once you get your TSH down below 2. But, I would recommend getting it a lot lower before trying.

Depression is one of the main symptoms of hypo - any sort of hypo, not just Hashi's - it's the low T3 that causes it. And, I know life must look pretty bleak at the moment - and it being winter doesn't help! But, spring is just around the corner, and by then you should have much better level of thyroid hormone, and life should be looking much, much better. Hang on in there! :)

6 likes
Reply

Thank you Goose! such a wonderful post.Are headaches also a huge part of hypothyroidism like migraines? I have pressure from both sides of my head and eyes are just killing me at times blurry vision.What gp can do to minimise the pain of my eyes ?could it be something perm or it will go away till my TSH will be fine? Could I have TED?iam really scared.Should I go to work or not?I was off twice already and iam so scared to lose the job.They will sack me for that and won’t be happy .I went last week on 4hours but dropped in tears last Friday because of my results and my sharp pain in chest.any suggestions?my pain in my back of the head is killing me all day ...paracetamol is not helping me at all.

I have ordered selenium 200 and will see how it goes thank you!

Iam at home in sofa all day I feel so old and invaluable at the min even iam just 31 years old and not so bad looking but I guess anytime can happen anything to anyone .

I used to suffer from anxiety and panic attacks before out of from blue.I had stressful life before yes .I noticed that my hair are a bit more falling even during I took citalopram all these years had dry skin flaky cold and constipation problem .Once I got off from citalopram this year than all started again and went worse.

Reply

Headaches can be due to your hypo, yes, but they could be due to your eyes. You really need to see your doctor about it. All he can do to treat you is give you pain killers, but he can refer you for a complete check-up on your eyes to see if there's anything other than hypo wrong. And he can sign you off work.

It's very rare to have TED with Hashi's. That's a Grave's thing.

Feeling old and hopeless, having anxiety and panic attacks, they are all part of being hypo. The brain uses a lot of T3, and suffers badly if T3 is low. But, it will get better. The sofa is the best place for you, at the moment. Plenty of rest, and try and distract yourself with something silly on the TV.

Falling hair is a hypo symptom, so an antidepressant isn't going to help! Improving your T3 levels is going to improve so many things. :)

3 likes
Reply

It will take a while to see improvements, Ari. I struggle with the patience for waiting for those too! I've found meditation to help with the stress of it all and it really helps me relax. Also, a gentle walk in nature helps. I know you feel totally dreadful at the moment but it will get better. This is what I keep repeating to myself as I wait for improvements! Distraction with some TV or a good book also help. You can wear yourself out trying to take in too much information all at once, so go easy on yourself. Sometimes baby steps are what are needed. xx

2 likes
Reply

Shiny u are such a darling too I think I have to stop to go to work in my condition as mentally iam not alright I know that all iam thinking is about this what I have at the min and what will happen to me etc all these thoughts are just popping in my head.Iam also scared what if my heart will stop one day because of these palpitations and things.i tried Togo to work last week only four hours but it was so hard mentally iam just all the time self conscious what is going on with me also iam scared to lose the job as it has been twice like that of my symptoms palpitations etc.I am under protection data 2010 now with a long term sickness .Iam off an on at work.I feel like a crap I used to be alright and good mood etc seams I have lost everything in life :( iam thinking to give up on job I don’t know what else to do the job I love !got perm three months ago also!but my health is at risk and this is like make it or break it now !

Reply

I'm not sure what you mean when you say you're under protection data 2010? Hypothyroidism is a horrible condition that affects so many things. I've felt rubbish nearly my whole life - I'm 50 now - and have only discovered the root cause - low thyroid - in September. I've had significant amounts of time off work with illness (all which I now see are related to hypothyroidism) including depression and M.E. But now we both know the root cause, we can work on improving our health. It's hard to be patient, but we'll both get there!

Are your employers sympathetic? I'm wondering if they could maybe look at reducing your hours for a while? If you can keep working, it does have its advantages, eg distracting you, giving you a purpose, etc. But if you are not well enough, then maybe it's best to take some time off. I would try to keep the door open though if you can, rather than leave.

Your symptoms, eg the palpitations, will improve once your thyroid hormones start to improve and you get your nutrients sorted. As greygoose said, focus on one step at a time or you'll get overwhelmed - "deep breaths, take the levo, and cut out gluten." She's a wise bird, is greygoose !

2 likes
Reply

Yes I think I had thyroid issues long while ago and citalopram antidepressant was only suppressing symptoms and masking the actual cause.The actual cause is thyroid!and now I think it has got to that point that help is needed for life.I know one day I will look back and will be greatful for all these advices .Do you cut gluten also?Can you share anything with me ? Websides ?

Yes my work is understanding iam on 4hours now .iam just scared of these flares when antibodies will have an attack on me .Thats all .it comes and it goes !How u coping with your life now?What changes have u made? Iam so happy you have found finally answers and results.iam happy I pushed my gp to do Antibody testing and look what it shows!

Reply

That's good that you have a supportive employer. That can make a big difference!

I've always been interested in nutrition and diet so that's one of the main things I try. I've cut out most gluten - but I don't have hashimotos. I started eating a lot more fat, which helped quite a bit with easing depression. The brain needs fats! There is a lot of information coming out that saturated fats have been wrongly demonized for the last 60 odd years. I started on a low carb high fat diet early in 2016 and lost three stone in weight over about four months, without eating any less. I've added in some more carbs more recently though, as I think you do need some carbs if you've got hypothyroidism. I've read conflicting reports about it to be honest, but have added some back in.

I forked out some money to consult a nutrition therapist - it's costing quite a bit but is helping, I think. I say I think, as I'm still waiting to feel better! LOL. But she's looking at things like reducing inflammation in the body, sorting out hormone imbalances, supporting my adrenals (adrenals get depleted with hypothyroidism apparently, as they keep releasing adrenaline to try to compensate for the lack of thyroid hormone).

My biggest problem at the moment is brain fog which I'm really struggling with. And low energy. I'm finding it pretty hard to hang in there for the improvements, but they've got to happen soon!

Hope you're feeling a little brighter now, and hang in there. Things will improve. xx

1 like
Reply

I need er knew nutritionists are so clever !do they check all vitamins and minerals and advise you what supplements you should have ? What about food intolerances? I was thinking about this myself but one appoitment is £75 plus all the vitamins etc it is costly yes I agree but what is more important than ur health isn’t it.Do you work ? Iam following 4 pillar plan book released 2018 by one Indian doctor ( previously gp) I forgot his name but he is very famous now.He is trying to reverse diabetes type 2. With nutrition balance hormones by good fats like u said avocados coconut oil etc this is what iam doing now.at the min I do feel better and have stood up from sofa :) I peeled potatoes and cooking salmon now with veggies !that will make my day.i take multivitamins daily omega 3 probiotics ordered selenium 200mg they say it helps thyroid and magnesium oil I spray on my body 5-20 sprays .so every little things helps and I guess we have to take everyday as a day and slow steps at a time.

Reply

It's definitely pricey... You'll find some good basic nutrition pointers on this forum for nutrients that are necessary for the thyroid, eg ferritin, folate, vit b12, vit D. If you can't get your GP to get these tested, it would be worth paying for a private blood test to get them checked. Rangan Chatterjee? Sugar free is definitely a good way to go, and eating more fats. I love avocados! and coconut oil. I make coffee by whizzing it in the liquidiser with a spoon of coconut oil. It's delicious! I've recently switched to a really good quality decaf fresh coffee.

Glad you're feeling better! Sounds like you are doing a lot of positive things already. Enjoy your dinner and look after yourself :)

1 like
Reply

Oh yes it is him yes yes that dr I think he is brilliant have u read his book recently released I pre ordered he has good tips and such a great sense.yes will check those vitamins next week definitely! Have a lovely lovely evening and thank you so much for all your support and care. God bless

1 like
Reply

What a wonderfully kind response greygoose . We are all very lucky to have you on here.

5 likes
Reply

Thank you, Kipsy. Kind of you to say so. :)

2 likes
Reply

Also what I have is severe pain in my eyes in side when I move them for many many weeks now but it’s gone worse my both side of head where eyes are upper to the ears are hurting when pressed . I can not tolated this pain on eyes .Heard of Graves’ disease don’t know do I have it !are my muscles inflamed there and what can be helpful to use or ask to gp

Reply

You need to see an ophthalmologist. It's rather doubtful you have Grave's, that's hyperthyroidism, but see what the eye specialist says. They would know what to look for.

Reply

I know you have lots to think about at the moment - and as others have said you need to rest and take it easy. When you are feeling stronger then some more testing maybe a good idea - like B12 - Folate - Ferritin - VitD. They all need to be good in range for you to feel well and for your thyroid hormones to work. One of my daughters suffers with chronic headaches when her Iron/Ferritin is low - iron carries oxygen all around the body including the head :-) So pop it on the To Do List and leave it for now ....

People here will have you well in no time :-)

2 likes
Reply

Ayesha

I haven't read all of your post, this time.

Have you gone straight from 25mcg to 75mcg?

1 like
Reply

Yes gp told me to start at 75mcg I was on 25mcg for 11 days .He said 25 mcg won’t do much so having these kind of results TSH 44 now read pls my post what I did is I took 75mcg for one day straight away my stomach started to clear out and I felt better but what iam thinking is to go on 50mcg and slowly increase dose what do you think as 75mcg would be way too much

1 like
Reply

Ayesha

1)

Are you still taking the Spironolactone and Metformin?

2)

Have you asked or will you be asking GP to test

Vitamin D

Calcium

B12 & Folate

Ferritin?

Reply

1/ no I stopped Metformin and spinorolactone as my body is already struggling so first and foremost I have to sort my thyroid issues this is what gp told me to do and I think it is correct .

2/I will do vitamin tests next week I mean this following week

1 like
Reply

Yes, remember - we said on Christmas Eve to get Thyroid treated and nutrients deficiencies investigated first!

So, now you have stopped the Spironolactone are you back on your healthy diet.? As, I recall, you were afraid to eat fruit and potatoes and drink water. Which is probably what caused your severe constipation - coupled with your Hypothyroidism.

Reply

I was drinking water I didn’t stop it :) yes iam back on normal food thanks God don’t know if zits or pimples will come back though :( will have to wait and see!

I am checking definitely next week my vitamins Defo it’s been a rollercoaster for me but iam feeling tiny bit better!do you think 75mcg could be little too high? Should I try on 50mcg as a beginning for couple of weeks and do the blood test and see !

1 like
Reply

Only you can answer that, Ayesha. Read your Levothyroxine leaflet thoroughly and think about what your GP said. Usually people start on 50mcg then go on to 75mcg . But you have had a bit of a hazardous start. The private Endocrinologist consultation and report seems to have caused some confusion. But that's behind you now - thankfully! AND - you say you are feeling a bit better now. This is very positive. Do you think you need to relax now and give things time? You don't have to worry about what you can eat anymore - it did seem to me that this was a major cause of your stress last week. Sometimes, we need to relax and give things time. You've been through an awful lot - but you are on the right road to getting better now.

1 like
Reply

Yes I think so I need to relax my body and sort my thyroid out as this is the main thing in body which controls basically all metabolism and functions in body.Just scared now from side effects as I had when I was on 50mcg that is why I think 50mcg is better it’s better to do slowly rather than quickly and have big side effects .Sometimes the quickest way is not the best way and hypothyroidism like me so big I need to introduce Levothyroxine slowly again and gradually increase as I read it’s not a good for heart .my heart already has gone through palpitations flattering etc I think it’s tired and needs rest a bit .Also what I found that Mercurypharma brand is much better than what I had before .but time will show ! also I asked gp to refer me to nhs endo he assured me that he will look after me and I don’t need endo.But on Tuesday I have appointment with another gp I will ask him .i think I will need endo once I will reach the edge of thyroid medication when needs fine adjustment .He also didn’t explain me about Hashimoto as people on this forum says I have Hashimoto.he just said oh antibodies are attacking your system that’s all no dietary changes nothing proposed .Do you know any good website about it?

1 like
Reply

Ayesha

Levothyroxine is NOT bad for your heart.

You need to take your Levothyroxine everyday for the rest of your life.

Relax now. I would give this time. You have decided to stay on 50mcg and increase to 75mcg in several weeks?

Yes - antibodies are attacking your Thyroid. It's called Autoimmune Thyroiditis. It's named Hashimoto's after Dr Hashimoto's who discovered it. Thank God for him !

Can I ask you a favour?

Please stop looking for things to read. You have made major steps forward.

1) You stopped those two drugs ( S & M) which seemed to cause stress.

2) You are now comfortable with taking the proper start dose (50mcg ) Levothyroxine.

3) You are back on a healthy balanced diet with plenty fresh fruit & veg.

If I were you I would take things easy now. Ask for those nutrients blood tests next week as planned. Post results on here.

Any concerns before then just come back.

2 likes
Reply

Have u read my main post

Reply

Hi Ari3

So sorry to hear you have been feeling so bad. You have had lots of good advice and will soon feel better hopefully. Post lots questions in here and take good care of yourself. Jane xx

1 like
Reply

Thank you ever so much and God bless u all xx

1 like
Reply

You may also like...