Thyroid UK
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Sorry to bat on about cortisol...and any thoughts pls on parathyroid

Hi

I'm keen to know if anyone has had success in balancing cortisol levels if they have spoked high e.g. Way up out of range in the evening when chilling out anyway

Reading about Nutri products, ashwandga rhodeola gin sing etc

But has anyone had positive results please? It would be a guide and heart warming as the more I've read the more I feel, for me anyway, this influences the whole system to Thyroid

As I had cataracts in my fifties I'm now curious about parathyroid, as this is unusual at fifty and is a definate feature of cataracts, oh for a good endo

Symptoms, loud tinitus, brain fog and lots of fatigue, low spirit itchy rash, small viligi, low pulse and temperature,

(After a battle to be referred I've had a letter from endo cancelling my appointment saying just keep on regime, the regime being 50 levo ...... and still up,there in 4.4 tsh and feeling more rubbish on it that when not on it

I'm at a loss to know,what to do, I haven't had success with levo to,date as the first brand brought bad chest cataargh which is something I've never had before, and the second brand unsure, I'm still,with itchy rash so basically reaching an end of tether

Sorry for negative post, I'd love some enlightening news, just needing way forward to get on with life like I used to

Best wishes

To the member that said I must take ndt, I didn't go that route as it made sense to first go down the levo route to a one - which is a million miles away at the moment and I'm back to a dispirited settee blob right now, pondering

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Hi Jeppy

I'm not familiar with parathyroid but can offer my experience with cortisol levels while on thyroid meds. Like you, I suffered from tinnitus, extreme brain fog, depression, extreme fatigue, low temperature, itchiness and constant rashes. I was on Levo 100mcg for the thyroid and hydrocortisone 15 mg for Addison's. I took a lower dose of the hydrocortisone not later than 5 pm. Too much cortisol late in the day will interfere with sleep.

I didn't do well with Levo after taking it for years, I felt rubbish all the time and though some of the symptoms subsided, I still didn't do well enough. I moved to T3 and that helped a lot. However, the T3 also depleted my cortisol levels dramatically and soon I was back to extreme fatigue, brain fog, etc. I upped my hydrocortisone to 30mg and am feeling much, much better now. Brain not so foggy anymore, no tinnitus at all, definitely lifted mood and less itchy and fewer rashes! My temperature is still quite low at 35.7-35.9 C. The T3 is helping with raising that but am not yet there. I'm titrating the T3 and expect the temp to improve with time.

Perhaps you should ask your endo to check your cortisol levels and maybe drop the Levo if it's not helping! I hope this helps a little.

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Sabina what was tsh, and how high did your levo go, did you get tsh down to One

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My TSH was low at about 0.1 if I remember correctly, but Reverse T3 was very high, hence the Liothyronine. I was on 100 msg for the Levo but obviously this T4 medication was not converting to T3 efficiently and my doctor stopped the Levo and put me on T3. The Levo DID get my TSH down but if you have done your research, you will find that almost all thyroid sufferers caution NOT to ONLY go by your TSH results. Get your RT3 checked as well

I've been on T3 for only 3 months and I feel better already. I have struggled with my various ailments for 21 years and this is the first time I'm beginning to feel more like myself

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So pleased for you that's so good

I've had 17 years of it but can see I had it two decades previous to that and had pre eclampsia in the mix and psirosis

I Do have a brain block

If say your t4 ismokmlevel WITHoUT levo domyoumrewlly have to reduce tsh

My t4 was good without levo but t3 a bit low under half

And was your cortisol high in the evening out of range like mine? Maybe I do have Addison, I sent another post about my adrenal saliva test

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Yes you are so so fortunate to have amenable doctor and endo, it's a lonely place without any doctor back up or an endo support (as too expensive to have repeated bloods checked ) best wishes to all the others out there in same boat, I hope we can get attended in the new year xx

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Sabena - research has now shown that 50% of people don't have trouble sleeping taking HC after 5pm but 50% will so it worth experimenting! Also cortisol production starts to be made around 3am in a "normal" person which means that if you take your last dose at 5pm you are going 12hrs+ without any cortisol in your body, so you start your day trying to make up the cortisol. I've found that I sleep much better & have a better quality of life by splitting my HC up throughout the day. Well it works for me but may not for everyone as none of us are textbooks!

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.....may I ask why you needed HC

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Jeppy I had a pituitary tumour that was producing ACTH which is the messenger hormone to make cortisol in the adrenals. So I had really high levels of cortisol (steroids) in my body, when the tumour was removed my pituitary didn't make any ACTH to get the adrenals to make cortisol so I have to take Hydrocortisone now. Some people's pituitary will "wake up" after surgery however mine hasn't which is why I need to take steroids - we all need some cortisol to live so if I didn't take it I would get into a serious life threatening condition which can lead to death if not treated. I'm now dependent on it so have to take it every day, I have to wear a medical id bracelet & carry an emergency injection, I also have to be registered with my ambulance service so if I call 999 they know to respond quickly!

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Thankyou

Poor you and so pleased your ok it's marvellous how treated

H n y and lots if good wishes x

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PaulineS...thank you! I will experiment and let you know. It might help as I wake up fatigued. Thank you.

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You do realise that taking HC throughout the day when you have adrenal fatigue, will cause your adrenals to shut down and you won't be able to come off it. For adrenal fatigue, you shouldn't take HC after 1 pm. One dose on rising, one around 12, but never after 1 o'clock.

It's people that have Addison's that need to take it throughout the day. And people in your situation, of course. But, you should be wary of recommending to people with adrenal fatigue that they should split their HC dose throughout the day. :)

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Not sure who this is directed at but I was replying to Sabena who is diagnosed with Addison's disease which is not adrenal fatigue. I would never advise HC for adrenal fatigue as the medical profession don't recognise it as a condition unlike Addison's, PAI/SAI which is a life threatening condition where you need HC to live. Taking any HC when not diagnosed with adrenal insufficiency or for any other condition puts you at risk of shutting down the HPA axis (Hypothalmus, pituitary & adrenal axis.

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Well, I was sort of talking to you, because I couldn't find the start of this conversation, where HC was first mentioned.

I totally agree with what you say there, people with those serious conditions do need HC, but it can be useful in treating adrenal fatigue if supervised by a medical professional who knows what he's doing. The trouble is that often people will see something talked about, and want to try it for themselves, so I just wanted to throw that in there. I have known people self-treat with HC and get it drastically wrong! So, a word to the wise. :)

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Hi Pauline...I'm on HC for Addison's as you know, just wondering if it's ok to take HC and T3 at the same time.I have been taking HC an hour before the T3 and it's so inconvenient as I dose 3 times a day for each medication. Because T3 depletes cortisol, I was just wondering if it would be effective to take them at the same time and not affect the HC balance for the Addison's?

Not many people suffer from Addison's and thyroid disfunction at the same time and so I have find it difficult to get much help online. Like you, I have to take HC for life and walk around with a HC injection in my bag! Do you also have thyroid issues?

This has been the best and most helpful forum for me to date! I hope others can chip in and advice or maybe I can find others here dealing with the same set of issues.

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Hi again

Maybe cross lines as as far as know I haven't addisons, I have only been tested to find that have fatigue and high cortisol twice out of the four salivas

So still supporting with Nutri and will be retested soon

I'm sorry I can't helpmas not informed as all further than this, I expect there are posts on this to help x

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HI Sabena

I'm also on Levothyrxine which I take at 3am when I'm just taking a small dose of HC so it doesn't interfere to much with the HC, especially as I take my HC every 4 hours! If you are on Facebook then join the UK Addison;s support & info group, if you;re not already, there are some very knowledgeable people on there!

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Thank you Pauline for the response and the ref to the Facebook group. I didn't know there was one. Thanks!

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Hi

Is this one for me

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I am concerned about adrenals for,sUre but the report with my random results was stress

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I've PMed you. :)

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Sorry about post, I'm still a fortunate, I'm making too much of everything at the moment and far too sensitive for own good, the anx drives me nuts as just want to fix, (only just diagnosed after 17 years of going into the docs when got overwhelmed, I'm afraid it does affect integrity when treated like a nut, k owmtheres something in the screen to warn 😱 Feeling basically an unheard nuicemse at best! I don't know,what to do now, I haven't the guts you have to go alone, I at least want to know the pituatory and parathyroid are ok, May I ask what the symptoms are for problems in these areas ? Finding it all a bit overwhelming right now as to next step, had a nap after first post and off for another now x

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Thankyou so much for reply Sabina

Yes helpful

Are you supposed to feel worse on levo before better I wonder? What causes our rashes?

I haven't an endo as said, he cancelled my appointment, so it's pretty well depressing, I can't gomprivate or would

The doctor had sometching to do with this I pretty sure as he didn't want to refer me at all

It's like being back to square one, I've never felt so alone and unheard, other symptoms are vertigo, a lot of irational panic, and no well being, basicslly

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Have you had your nutrients tested? Vertigo could be due to low B12.

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Jeppy, you're not alone. Everyone in this community hears you and understands exactly what you're going through. Hang in there!

I felt a little better on Levo and ultimately had to change to T3 to feel even better. Leo didn't work for me but then again, with all your symptoms, you might actually want to rule out adrenal fatigue and get your cortisol levels checked. I had vertigo due to Addison's disease and slept all the time too due to extreme fatigue. Find a doctor willing to check your cortisol levels and by all means please check your pituitary and parathyroid as well. I have a pituitary tumour and this was the beginning of all my problems! Don't give up on finding a doctor who will listen to you please.

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Thanks s

I e been to five in the new practice where I live and they don't want to go there, they say, who is your regular gp

Did the tumour make you ill in another way? I'm sorry

Sorry I went pop as been patient and persevering 17 years like many, it's so bad to keep being unheard for integrity, yes so ,anynof usmfor sure, where is placid me gone to 😔

Can't we do a March or something

So, did your tsh go right down? Did you get it to a one

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And yes, I've had saliva adrenal test, it's spiked over range at 11am and then spiked really high in the evening when chilling

Does this sound like yours??

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I hear you thanks but the reality is I e tried a few in the knot practice to serve town and they all snug by same sheet. I'm Normal no action, no there isn't adrenal support ! I e asked on three occasions

So back to drawing board

Forgive me for getting overwhelmed the other day I'm human I guess, when you aren't even heard and made to feel foolish it's no joke xx

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Jeppy

I wouldn't stress out about that particular Endo cancelling your appointment. I know it's disheartening when they do it but...

I'm going to give you most possible reason for that.

Most likely she/he doesn't have a clue about thyroid (shes diabetes specialist and at the same time dimwit) so she knows she wouldn't be able to give you any constructive and intelligent advise/help. She knows she's clueless, looked at your bloods and did what what clueless people do best - which is nothing.

Ask thyroid UK for the list of recommended Endos in your area and ask your GP to refer you to one of those instead.

Again- if you feel your GP works against you - change him/her. Best change surgery as they exchange views on patients within the same setting.

And to cheer you up - most of us on here are having the same problems with doctors as you do. Doctors don't understand, are unwilling to help and work with us. Don't have a clue about thyroid. Endos cancel or refuse appointments. Been there, got the t-shirt.

You have to educate YOURSELF on thyroid if you want to get better.

This is very good forum. Some people give brilliant advice, some not so much, there are varying opinions on meds, taking times, what to eat, what not, etc - so you need to take it all in, digest and get the best out of this mix to suit you personally.

Fingers crossed, all the best 😀

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Thankyou yes I know, sometimes I just what may seems silly questions to forum but are adding up in my mind if you know what I mean, I'm slow at joining dots I've had this soooo much of my life many decades, I feel empty sadly

I'm starting ndt now I e had two bad levo experiences and it's time x I e reached the point

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Ignore people that say you 'must' take NDT, as if it's some kind of cure-all magic potion. There's no must about it. NDT doesn't suit everybody, anymore than levo does. I had a doctor that would only hear of taking NDT, nothing else would do! I lost four years of my life trying to make NDT work for me. It didn't. Try it, by all means, but don't obsess over it. If it doesn't work, accept it and move on.

But, I agree with you that your TSH should be brought down before trying anything new. Could be that levo will work perfectly well for you, once you on an optimal dose. :)

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Hi again go

Do I need this k vitamin, any info appreciated

Jx

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Sorry? What K vitamin is that?

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Hi again

What was your tsh. Wa your t3 very low

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No idea who you're talking to, here. If you wish to address someone directly, you need to click on the green 'reply' button under their comment. :)

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Thanks gee gee ok, il spend a few week getting dose up il bluff my way round it, where do I get more levo as will run out?

Gee I may get better who nose

😜😜😊😳

Can the cortisol resolve if no worry or stress and I live a good clean life 😊 Although it does sound a bit too boreing for me 😳

It can't be right to go way in when you are chilling at night and it should be at its lowest

What's going on? I know not meant to look at impad which I do

Maybe il go for a brisk walk, have a soak, do big changes, even a swim

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If you want to buy levo without a prescription, write a new post asking people to PM you their private sources.

Cortisol can resolve itself if you manage to raise your T3. Have you posted your cortisol results somewhere? Bit difficult to reply to your questions without seeing the results.

What is 'impad'?

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Yes I've put it on twice gg

The morning one. In range

11am. High and out of the range

Afternoon one was in range

Bedtime soars way up very high out of the range even when I'm chilling ........

Ordering another test this week

Sadly over time Ive not had any private messages replies when asked lots about endos And also t3 except for one lovely lady, so I don't think il pm anymore 😔 Makes you more gggggrrr. I'm looking for a low stress year

Happy new year to you!

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Well, I can't find anywhere where you've put the actual numbers, just 'high' or 'in-range'.

The trick is not to reduce the high spots, but to increase the low spots, then high spots will sort themselves out. For that, as you know, you need to support the adrenals. But, if you're going to get a bottle of something marked 'adrenal support', make sure it only has dried adrenal gland in it, not lots of herbs and stuff. I think you need the adrenal cortex, rather than whole adrenal, if you want to avoid adrenaline.

Adrenals need lots of B vits and vit C. And don't forget the salt! You should also have a high protein breakfast as soon as you get up in the morning, so best to take your levo at night - that's best for adrenals, anyway, I believe.

For buying T4, I'll see if I can find a link for you, later.

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Bless thanks so much

Il get the results when home, thanks gg

Sorry you looked, yes I thought that was sufficient on two ocassions

That sounds pretty good, of course, if you bring up the low it sorts out,

Well I git Nutri Adrenal but it does have Adrenal in it

The consultant at Nutri said it's Not Adrenalin? And I was confused, kw moreso but doesn't take a lot

Which would you recommend? Make?

I have become so ultra sensitive it seems. I can only imagine it's Thyroid or sex hormones?

Emotional far too sensitive so my sisters keep telling me which makes me worse, and my skin is showing it with this rash, and I notice I've lost my woomoh, I'm now a bit woos

Is this what others find, I hate it and it's scary

I've had a few field mice pop in and it's made me a nervous wreck whereas at one time I wouldn't be that good with it but tons better than this - I'm like a visitor in my own home creeping around!!!! Instead of batting about!!!! I'm saying it as a joke but true!!!!

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I think most hypo sufferers feel like that at some point. I know I do sometimes. I freak out at the slightest little thing! Whereas, in the past, I took everything in my stride - bring up three kids virtually single-handed in an old house in the middle of nowhere. Could do it now! lol

I really don't know about Adrenal Supports, I've never taken one. Sorry.

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Thanks for that

I just think it's me! I'm still a bit self absorbed I guess and I used to be complete opposite, yes, me too, three children single parent for ages, I wonder how I did it. We just kept going

Is there any correlation Ive wondered with personality types do you think? (Having read stuff about the physical being brought in by the emotions, know it's quite deep!!) 😱 Also do many get their sex hormones checked out alongside, as I'm sure it's the whole mix of things. A bit like a post natal depression. - I had one of those ( did you) and I had one pre eclampsia and one very aneamic! I think I got off quite likely by what Iv read, I'm glad I didn't know as I wouldn't have my lovely three!! X

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Yes, I had post natal depression with the first one - and the help I got from the NHS was quite scandalous! But that's another story.

But I didn't have pre eclampsia, just three really horrible pregnancies. I used to get quite envious when I heard about how some women 'blossomed' when they were pregnant. I was a greasy, miserable wreck, covered in spots and losing my hair. Put on 2 stone with the first, was always getting shouted at by doctors and nurses, but lost the whole lot the day he was born! Unfortunately, I didn't see anyone to say 'up y***s' to, afterwards. With the last one I lost weight, and still got shouted at by doctors and nurses! You can't win.

With each successive pregnancy, the 'morning' sickness got worse and worse. Would have liked a fourth baby, but couldn't face it. I was so ill. But, as you say, all worth it in the end. :) I now have three lovely adults, and five grandchildren to warm my old age. lol

It wouldn't be surprising if your sex hormones were out of whack. When one hormone is off, the others tend to be. They should fall back into place when you get the thyroid sorted.

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Oh, and no, I don't think there's any correlation with personality types. I'm very, very wary of this whole 'physical being brought in by the emotions' thing, because it gives doctors an excuse to just dismiss us as crazy, offer us antidepressants, and indulge in a bit of patient-blaming. So, I steer clear of that.

However, it is well-known that physical and/or emotional abuse can cause hypothyroidism (don't know if that includes Hashi's). I did have rather a difficult childhood, one way and another, and then married a psychopath who gaslighted me right from the day after the wedding ceremony! And, if that didn't actually cause my Hashi's, I'm darned sure it didn't help!

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....o how awfUl, 😔 Well I've had my share of abuse but say no more, I have always been a bit doom and gloom at times, and others say this is the case, or, is everyone (!no probably not, just thinking of PM but she does have bags, I've got those and dark rings lol ). I had the dark rings as a little girl !!!!!parents said Get to bed earlier ! Haha. But, told by primary friends that I was 'joyous ' as a child, so where does it start? I've read the pmts and pregnancies and menopauses all highlight, strain, all my baby waters disappeared before labour, ( my sister still says they went into my ankles hahaha). So that was definately auto immune, but which auto??? And yes, I was the slimmest ever after the birth, loved it but would say I swung into hyper and back and to for a while, I was petrified at baby two as scared it would happen again ( my aunt died in childbirth) but all good then got post natal depression, dad dies too then somit was a bit of s mess then I picked up again and had number three, very aneamic, she had squints and I've read this is connected ??? I've had cataracts in fifties so wondering shout this side of stuff, only diagnosed last year,,,,,, after dragging round for Seventeen years, I've felt so let down so this doesn't help the condition I know,

I had psirosis too after babies, somwhich auto is this.. each time it got better in own as I won't put on cortisone etc, and the skin colour remained but six years ago I got viligi, which is in the list for sure, If only I'd known more

Il know if I really have general anxiety when I'm euthyroid and that is what il tell doctor next time, imtoo,fed up with the despairing looks, s,etching just snaps and I've been patient all,these years blaming meno , stress etc, Sadly I may not have been divorced, or force to move area bla bla had I been sorted out so it's difficult to get past properly

Good news I've just actually been given the Acteris prescription from doc, as he thinks I just make it up basically and make a fuss, lol. this horrid very very itchy rash has really subsided now I've not tsken the teva for three days, filler been changed!

others report this too so I'm not a crank on own, I take clutters point it would have come out sooner, but thinking of this, imoribably had the older stock before xx

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'Probably' I PAD

Sorry. I got in a roll!! Haha.

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No, you're definitely not a crank! 99% of all your problems can be down to the Hashi's, in my opinion! But, doctors don't understand.

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Thanks gg

Helps to get it out, it's a lonely rd but getting there, il bedropping a line to me ex doctors of 17 years 'when I'm better and confident'. I just want to be sure they get to read it. Haha il wait out in the car park with my letters 😊

Have / haven't others addressed it to their gps if been let down?? , I think it's a must do, surely to point out a few major points can't go amiss if related to your story, Need to make use of the awful experience maybe

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I don't think it gets you anywhere, most GPs refuse to listen because they think they know it all!

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Well, I just think it should be made known in our only way possible. Formwhat it is worth, unless we do a March !!!!!! No, to would be water off a ducks back I suppose -

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A march is hardly faisable for many of us! Unless walking to the front gate and back counts as a march. :)

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Haha well. Get pushed!!!! I've never been militant, It helped the single father cause I seem to remember, they clambered over the palace haha. Something has to happen to get this highlighted in Uk

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I agree, but what!

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Well, has anyone mentioned the e.mail thingy that has a survey on it and you vote and then it goes to parliament when there are enough names on it!?

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Oh yes, I think all of us on here know about that. But something like that is so easily ignored.

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Dreadful business - I'm at a loss to understand how the tsh range can differ, is it only the Uk do you know x

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For all sorts of reasons. One of them being the crazy way they fix the ranges. Can't remember the exact details, but basically, the individual labs take an average of all the people that have their blood tested in that lab, assuming that none of them have thyroid problems. However, it's more than likely that a lot of them do have undiagnosed hypo or hyper.

I think it also depends on how many people you want to diagnose! The low the top of the TSH range, the more people will be diagnosed with hypo, and that costs money! False economy for the NHS, but a god-send for Big Pharma!

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Yes I've come to accept that, they simply don't care about people's health vs money

Is it just the uk do you know, that don't treat When 2.5. as I've kept reading other countries will recognise hypo is over 2.5 especially with symptoms

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Over 3 is hypo. At 2.5 the gland is struggling, but not quite hypo. But, TSH should not be used on its own to diagnose or to dose because it is very unreliable.

I think the problem is universal, but it exaggerated in the UK, where ranges sometimes go up to 6, and even then, some doctors like the TSH to reach 10 before they will diagnose.

So, we have the double problem that, not only are the ranges unrealistic and unrepresentative, but also doctors manipulate them to suit their own ends.

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Thanks so much, it's really helped perspective, of course, some folk aren't as self aware etc, we blame this and that like I did, after all, you have to cope somehow

Journalist thoughts are all I can come up with right now, aNy other thoughts xxxx

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.....About campaigning, I'm relatively new, I don't k ow what has been tried in the past

Just watching Anne Diamond explaining how her cot death campaign was successful due to her being so well known when she lost her little baby........and then campaigning for Cot Death syndrome

..........needing to enlist high profile folk! Who are prepare to understand how,it's been for many, I was quite amazed when Dianna supported the pre eclampsia group, She must have had it touch her somehow, maybe a friend, I know, as I write it, you need to get lucky!!!! Just keep complaining and putting it out there - are there any hypo journalists???? Get it into mags

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There are lots of hypo celebreties, they just don't like putting themselves forward. And, if they do, they make all sorts of stupid claims about how they 'cured' their hypo, when we all know that you can't sure it. It's just not the sort of publicity they want.

There's a hell of a lot of prejudice about thyroid problems, for some reason. I used to have a friend that I just knew was hypo, she displayed so many signs and symptoms - including loss of eyebrows. But she reacted as if I'd accused her of having an STD, or something, and claimed that she liked her eyebrows that way, and it was the result of vigorous plucking! No way would she contemplate the idea that she might be hypo. Which is amazing, really, because she copied everything else I did! lol

There is a campaign going on at the moment about the loss of T3 : ITT. If you're on Facebook, you can join it there. It's run by one of our members.

There's also the Scottish Parlement campaign, which is often mentioned on here, but I don't know much about it.

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Thanks so much

Room for thought, I guess I do understand why those choose not to believe it etc, it's their coping mechanisms and want to get in with life without negativity ( personality, beliefs etc) very complex, It's fine if you jog along ok ( albeit it's not right they not being treated ). ....it's only when it gets so bad that affecting your life unreasonably, and that then begs the question that it's far better to be treated early, so you can hopefully get on with life and put it behind you feeling well

I hate it all consuming at the moment, I'm off to chemist for actevis prescription, and rang four chemists who haven't got it, seems a problem somewhere and told different things, so,il just get mercury if this is the case as haven't given it a fair crack of whip, it takes willpower I guess to brush it away and get out there, to live without this annoying feeling going on! Who needs it

Have good day, taking grand daughter for some Doc Martins later haha. As xmas prezzie,

I've just the two grandchildren up to now, one 16 one 6 -

Five, wow! Lol. I don't know,how old the oldest is but if you become a great grandmother gg, your name is even more gg! 😀 haha my mum called herself gee gee, great grandmother!)

Xx

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Oh, the oldest is only 14, so still a long way to go! And, as she wants to go to medical school, I don't think she's planning starting a family any time soon!

The next up is 12, then 11, then 9, and the youngest - the darling little boy - is just 5. And all his older girl cousins treat him like a little doll. lol I'm just wondering how much longer he's going to put up with it!

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Haha. When they get into school the next two years shows a lot of change as you will know, my little grandson is just not holding my hand as much 😔 Until he forgets, but so affectionate, love little boys, less complicated haha

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:)

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.....may I ask what your tsh was when you got diagnosed - is France over 3.

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This is when cortisol should be dropping right down and im wired and in second wind, Meant to go to bed at ten and it drops lowest at about two

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I can't remember off-hand, but something like 13, I think. Where I live in France, the range for TSH goes up to 4, I believe. But, I haven't looked at my test results for a long time.

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When I read your result I do wonder what is wrong with me, I'm much lower than a lot of you guys

To make you smile, it's all about men!!! (do you know this one) men struation, men tal breakdown, men opause, And even Guy nacologist!,

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Well, we're all different. You shouldn't try to compare yourself to others.

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Re the personality type pre disposed, I really meant like e.g. If you are your own worst enemy ( which my mum said I was even when I was little as always attacking or blaming myself - strange child haha ) then the body does same !! e.g. The antibodies attacking you

Sounds daft maybe but who knows Xxx. Not any more 😜

Why did my waters go back into body, very strange really

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Um... I have great difficulty buying into that theory. Don't think it's daft, but highly unlikely. It's like women that think they have thyroid problems because they never spoke up for themselves. Well, that was rarely my problem!

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Haha oh, as in my throat area ! as I wasnt allowed to speak,!? I've heard of that, who knows? it's pre disposed I guess, in the genes, I look back and my lovely mum just suffered in silence, I can see so many signs now,

I'm dreadful as I kind of pick up things on e.g clients or sisters even, I wonder why they're ok, same gene pool, I believe this may be the stress that tips it, and want to ask others what their tsh is,!!!! ,,,,,,,,,,, haha one lovely client has sleep apnea, I'm sure this is hypo, and study eye brows etc, frustrating as they have dementias and maybe wrongly diagnosed which is dreadful

I've had to pull into lay bys for dozes!! Funny, I just put up with it, I don't why I didn't keep asking why - just blamed it on work or something and another thing is I kept procrastinating, still do, My son even asked me over two years ago why I wasn't dealing with stuff, I hope this improves btw , quite scary

How are you?...as quite new I sensed you were ok now, sorry if wrong though

And thanks for chat,,,, Xx

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Aw sounds good

Don't you think though that we may need to top up progesterone naturally preferably, as I've read umdeen times that enough progesterone balances out the rest,🤞🤞

So you sounded hypo in preggy for sure, didn't they sue it when hair came out, my friend had that and no mention of thyroid, luckily I expect, a natural body put her on selenium Ace! That helped!!! Her little boy diagnosed Asperger? ......... and interestingly he is twenty now and has never had eye brows...... it's hard as you feel he needs testing and the mum, but she is so phobic can't have bloods done, sad as the outward signs are all there

So when did you get diagnosed gg

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I finally got diagnosed when I was 55 - and then by accident! Nobody had ever mentioned thyroid to mentioned thyroid to me before that. As far as doctors were concerned, I was just greedy, lazy and a bit thick!

I'm not sure that progesterone does balance out the rest, I thing thyroid hormone does. I did take progesterone cream for a while after thyroid diagnosis, but it didn't do anything for me.

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Was it the cream from Guernsey, I bought that but wasn't consistent Too impatient!

I asked for hrt and always refused ( I was feeling quite desperate I guess to ask for that ) and I asked for thyroid checks then an endo and continually told yours fine, a bit borderline il redo it, then Your fine!! If only

I got joint and muscle pain over last six years ( poor body, keep going ) and after two trips to hospital just got sent to Pain Clinic, awful business

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Yes, I know what it's like. I didn't have any trouble getting diagnosed, but terrible trouble getting adequate treatment.

No, I don't think my progesterone cream came from Jersey, it was something my gynaecologist prescribed.

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Cortisol

Waking 18.9. 14 - 21

12 noon. 11.6. 4 - 9 👎🏻

4pm. 6.2. 2.5 - 7

Bed. 9.3. .80 - 4.50. 👎🏻

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Yes, that's an unusual pattern. Don't quite know what that means. It's good on waking, but then goes too high. Maybe if you post a question giving the actual numbers, you might get more responses.

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I've done that a few times 😔 ......was it worth seeing the gynaecologist gg? Did doc send you, I wouldn't mind that (or anything really lol )

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Well, I live in France, so I don't need my GP's permission to see a specialist. But, my endo did suggest I should go and see her.

Was it worth it? Not really - especially as I've had a hysterectomy.

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Haha. Why go may I ask? They sound pretty decent

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I went to get my sex hormones tested. Quite why the endo couldn't have done that, I have no idea!

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Well anyway it's good you were seen by gynicologist. I can't even see endo! I was going, and the doctor put on his remarks and the endo cancelled it, But at least he mentioned low range tsh, so I have this in writing now, battle!

Do you think my cortisol is reason to see Endo?

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Gg

I can't have the wardhart make or teva it seems

So hoping for the activas one if poss to try

I am desperate now to get down below a three tsh hopefully one, and then see if I'm converting ok xx

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(That was cortisol way UP at evening when should be at lowest )

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The b12 is way over now, I've overdosed so not took it for three weeks

All good with bits except need to get folic - what is this

I'm on selenium 200 b12 D. E. Just got rhodeola and ashwanga and magnesium powder

Do I need this k one? So,done said just eat Gouda?

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Why have you bought rhodeola and ashwagandah?

If you are taking vit D3, you need to take vit K2 - MK7, because taking vit D3 increases absorption of calcium from food, and vit K2 makes sure the extra calcium goes into the bones and teeth, rather than the soft tissues.

Gouda is a source of K2, but it depends how well you absorb vitamins from food. Lots of hypos have difficulty with that, so need to take supplements. Not sure that 'just eating gouda' would give you enough.

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Thanks gee gee very helpful, so what am I to buy? (What is the 3 in D3.)

I bought rhildeola and ashwanga as read it's supportive for adrenals, it is possible mynadrenals are causing the problems as they show to be harassed and doc peat stresses the importance

I've had saliva tests and I soar up at the bed time one when it should be going tother way!!!!

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...but I still need to get down to tsh one!! They keeping me at 4.5 and it's driving me mad, as say normal no action take 25 mg or 12.5,,,,, About this, I put myself up to a mere 50 mg and felt so ill. Tinitus trebled! Anxiety worsened but not as sleepy

Therefore you will understand I feel my adrenals may be letting me down as need strengthening hence buying the rhodeola product from Nutri, and I only take a half at the moment -

I've been unmedicated three days and this awful itchy rash is subsiding so I couldn't Claude the new teva filling is t agreeing, it's in other posts also about this embarrassing itching with teva and they changed the filler last year so seemingly it's this ( some micro wood pulp )

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(Conclude)

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I feel a bit stale mate right now, what to do next?

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I had high cortisol albeit not mega high, I have another post called 'I fixed my high cortisol' it says how I lowered it, good luck

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O thankyiu Joanne. How do I find posts. Douuuggghh I'm hopeless at tech

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Hi Jeppy, do you have the health unlocked app? Look for the magnifying glass at the top then press it and type in the box ' I fixed my high cortisol' hope you find it

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