Experience with gluten - occasional eaters - Thyroid UK

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Experience with gluten - occasional eaters

Danielj1 profile image
13 Replies

I know everyone here is being told to avoid gluten entirely but I am interested to understand exactly what people find happens if they go back occasionally.

So no need to respond if you remain 100% abstinent.

I am probably in the 95% gluten free category at the moment.

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Danielj1 profile image
Danielj1
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13 Replies
shaws profile image
shawsAdministrator

Not everyone is told to go gluten-free. It is advice given to those who have an Autoimmune Thyroid Disease (hashimotos) and it is to try to reduce the antibodies that this condition provides which attack the thyroid gland and at times 'dump' large amounts into the bloodstream which causes unpleasant symptoms.

However, those who are gluten-free will also respond.

Marz profile image
Marz

Yes it is advised to be 100% gluten free for healing the gut. If you have a reaction to gluten it can set you back around six months I have read. Have you followed up with the suggested websites people have posted ? - lots of good information on this forum leading you to rxcellent websites.

Sometimes we do not know what is happening inside. Read up on gluten ataxia - that may convince you to be completely gluten free - which I appreciate is very difficult 😊😊

Danielj1 profile image
Danielj1 in reply to Marz

Thanks, will do. If I eat toast etc I have no immediate reaction at all really. What I am trying to understand better is the wider knock ons for improvement of the condition - this is more “hidden”.

Marz profile image
Marz in reply to Danielj1

When we heal the gut we absorb all the good things our body needs .....

Dewberry1 profile image
Dewberry1 in reply to Danielj1

I find having it a few times a week is ok but too much to many days in a row i am affected. Nausea, bloating , pain, increased need to go loo. It’s not worth having the gluten lol

Naturegirl8 profile image
Naturegirl8

I've found that if I avoid bread entirely, and wheat products generally, I am fine with pure gluten as in seitan, mock duck etc once or twice a month (I'm vegan so its hard to avoid these all the time). I realised I was reactive to bread especially decades ago, so way before getting hypothyroid symptoms which began maybe 8 years ago. I'm not Hashi though.

Naomi8 profile image
Naomi8

I have been GF for several months,almost GF for several months & at present am eating gluten in moderation.I do not have any overt reactions from gluten that I am aware of.Amy Myers writes well on Hashimotos & diet,as does Isabella Wentz.I understand its about lowering antibodies & inflammatory responses,but the impact on my limited amount of travel & social interaction of going GF is huge.Also,I am very weak-willed.

They advise removing dairy for the same reason.I keep my dairy very low,or I DO react(headaches caused by an inflammatory response of the sinuses)

Marz profile image
Marz in reply to Naomi8

Maybe read up on the thoughts of Dr Datis Kharrazian - who explains how gluten molecules that escape from the gut can penetrate the blood brain barrier and cause inflammation .... Alzheimers anyone ?

cwill profile image
cwill in reply to Marz

Also Dr Amy Myers and Dr Tom O Bryan state that once autoimmune the amount of gluten doesn’t matter, we can have raised antibodies for up to a year after ingestion. I now have a gluten free home and it has made a big difference to me not to have crumbs to clear from the worktops and flour in the air from bread making. BTW I have been bedbound for 10 years so there is nothing that I won’t do to get better.

Marz profile image
Marz in reply to cwill

;-) Thanks for the extra info - appreciated ....

SlowDragon profile image
SlowDragonAdministrator

Every time we consume gluten, if you have leaky gut, then it can take 6 months to eliminate

You may not have any obvious gut related symptoms. Many don't.

But your vitamin levels can be adversely affected as gut function is impaired.

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

Lynneypin profile image
Lynneypin

I had it by accident yesterday.... helped myself to a few chips on my husbands plate, thinking they were gluten free (we were in a cafe). I’ve had gut ache and regret being so stupid.

DeeD123 profile image
DeeD123

I inadvertently went gf when I started the keto diet. I instantly stopped having heartburn and acid reflux, also no bloat after eating. I’m not 100% gf but I avoid it where I can and feel so much better for it. If I do have bread pasta etc I immediately bloat and have to take antacid for severe indigestion

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