Hello Everyone,
So many of you may of already seen my posts, I’ve been diagnosed with Hashimoto’s by my private Endocrinologist via blood tests and a scan.
He has said that as my TSH improved there is no medication to help me, disappointed is an understatement.
However, the more I read on forums this is a common occurrence.
Despite me trying to do all I can by going gluten free, giving up the diet fizzy drinks etc, vitamins etc, it’s not getting better.
I’m also seeing a nutritionist as I had tummy pains which is a result of my leaky gut.
I was put on strong antibiotics due to a stool sample showing I had a bacteria infection.
The antibiotics was given by a very un caring doctor and questioned every test I had done.
I have finished the antibiotics but my neck stiffness came back after them, brain fog and extreme coldness.
Today I managed to get an appointment to see the GP to see if I could be put on some Levothyroxine as I still feel awful.
Now, Don’t get me wrong I didn’t expect they would as my Endocrinologist wouldn’t, but, thought if I explained I felt terrible we may make progress and give the NHS one last shot.
I took my husband as well and this is how it went.
Me:
Hello doctor, I’ve had scans and blood tests and it been confirmed I have antibodies and Hashimoto’s which relates to the thyroid. I gone gluten free and I have got my vitamins levels to an acceptable range but I still feel awful.
Doctor:
(she was reading the letters on the screen)
If your Endocrinologist has prescribed anything I can’t help.
Me:
but I feel terrible,
husband:
she feels the cold all the time, stiff neck, worn out, she has a good day then really bad days.
Doctor:
your TSH level is normal and it always has been.
Me:
it hadn’t been normal it’s been 6, that’s out of range.
Doctors:
that’s in normal range.
Me:
what a TSH of 6!!!, it is not, and just because one of the Thyroid results are in range doesn’t mean others are correct and I don’t feel well.
Doctors:
Are you sure it’s not anxiety, other thyroid tests are irrelevant if TSH is in range. With your levels wecan’t prescribe anything.
Me:
but I have Hashimoto’s and it’s not anxiety, the scan and my Endocrinologist has confirmed this,I don’t feel well.
Doctors:
I don’t know what you’re been told about Hashimoto’s but I think you have been misinformed.
Me:
I’m getting support from Thyroid Uk and other organisations, so are you telling me there is nothing you can do then?
Doctor:
you need to go back to your Endocrinologist and speak with him, or do you want an NHS referral for another Endocrinologist.
Me: No thank you, I’ll source my own Endocrinologist, and pay private.
Goodbye.
When my hubby and I walked out, we both said well we already knew how it would go from all the support/advice I received on here.
I’ve now taken the decision to self medicate with the guidance of this forum and other forums.
I would just let to say a big thank you to everyone helping me through it black cloud.
Best wishes
Peanut31.