I have just spent two days in hospital for a suspected autoimmune condition ( autoimmune Encephalitis) after they found anti-glycine antibodies in my blood recently. I have had a spinal fluid tap and the results will take +/10 days.
However, they also had my thyroid tested as they suspect a connection between Hashimoto’s and AE. This morning, I was told that I am hyperthyroid and will be put on Euthyrox (100 mcg daily) until my TSH is between 1-2.
My current labs on Thyroid-S:
TSH <0.01 (0.4-4.5)
FT4 1.2 (0.7-1.5)
FT3 3.2 (1.7-3.7)
I have been on beta blockers (Tenormin, 50 mg daily) to try to get my resting pulse down (it’s usually between 80 and 100 bpm). I was told they will raise it to 100 mg a day until my TSH has normalised and I’m euthyroid.
What I wonder is: does anyone have any idea what could cause a racing heart like that? I’m also on blood pressure medication and my BP seems unaffected by recent weight loss (-25 kilogrammes). In other words: I still need the medication.
I have been considering going back on T4 only long enough for the TSH to normalise, and then repeat this once a year to keep them happy. But, apart from feeling sluggish during that time, does anyone have any idea how it works in practice? I have had a suppressed TSH for years, and I know there is something called the negative feedback loop. So, apart from the practical problems, I guess it’s not so easy to just go off NDT long enough for the TSH to end up where doctors want it, only to go back on NDT after going to the lab...?