Dismayed - Liothyronine

[Summer64]

Received this from NHS England this morning. I know I can't put two pages here so will just put the first one. The second page is just one line and says "I hope you find this information useful."

[Aurealis]

So they’re asking you to change the wording of your letter so it’s a complaint against your GP?

I’m also dismayed. So sorry x

[Summer64 in reply to Aurealis]

I've already complained to the CCG so no point going there and reading that what is the point of complaining about my GP?

[SlowDragon Administrator in reply to Summer64]

Have you written/seen your own MP, or written to Lord Hunt or Lord O'Shaughnessy

See Improve Thyroid Treatment campaign on Facebook for lots of info and letter templates

Write to your local pals too

[RedApple Administrator in reply to SlowDragon]

For those not on FaceBook, information and letter template also available on the main Thyroid UK website here thyroiduk.org/tuk/T3-Campai...

[Summer64 in reply to SlowDragon]

MP didn't respond, Pals were same people as CCG.Yes, I'm on ITT too. I don't think there's anywhere left. Not done Lord O'Shauhnessy. Who is he?

[SlowDragon Administrator in reply to Summer64]

Do you have NHS endo who says you have clinical need for Liothyronine?

If so, push again to get T3 on NHS

british-thyroid-association...

Pro T3 campaigners are Lord Hunt, Vince Cable and Jeremy Corbyn

Lord O'Shaughnessy is government spokesman on health

[TaraJR in reply to Summer64]

Lord O'Shaughnessy is Parliamentary Under Secretary for Health (Lords). Some of us on ITT have written to him, including me. My MP has written twice on my behalf. All we've all had back is spouting the same old, same old...

Theresa May should be sent a pile of letters from us all, though I doubt they would get anywhere near her.

Very downhearted at the mo...

[mrsm49]

I know its not the answer and not right but i currently get a t3 prescription from my endo and she gave me details on how to use it to purchase t3 myself. (My gp won't prescribe longterm although did do a couple of one offs). So its currently costing me around £12 month but at least I'm monitored closely with appts and blood tests. I'm not sure if this will be ongoing as im still deemed to be on a "trial"

Maybe you could approach yr endo to do the same?

[Summer64 in reply to mrsm49]

My GP gave me a private prescription so I could buy abroad but both the German and French one gave me dizziness. I need to find one that doesn't list that as top of the side effects list.

[mrsm49 in reply to Summer64]

Oh gosh that's a shame. I wish you luck in your search x