it's been a while since I've been here. I've got Hashimoto disease and I've been treated for 3 years now by a endocrinologist. I need to get my blood checked every 3 months, mostly because my levels keep going up and down. I must say I also have a pituitary tumor, I've got a prolactinoma for which I get treated as well (other pituitary functions were tested and were normal).
This summer I felt unwell and when at the endocrinologist my levels seemed a bit strange:
TSH 4,0 (range 0,3-4,6)
FT4 17,4 (range 10-23)
Normally my TSH and FT4 react normal when I adjust my dose, when I feel hyper my TSH will be (too) low and visa versa. Because I felt unwell and the TSH was high we upped my dose. Three months later this are the results:
TSH 4,5 (range 0,3-4,6)
FT4 23 (range 10-23)
This is very strange to me. Normally with this FT4 results I would feel unwell and have hyper symptoms and my TSH would be too low. Right now I feel unwell but I don't have any hyper symptoms I would normally have. I feel more hypo.
I've discussed this with my endocrinologist and he said indeed it was strange and probably my body needs/wants more FT4 (why suddenly??) but we couldn't up my dose because my FT4 would get too high. He said to come back in december and check my bloods then.
As you can imagine I feel sick and waiting till december is way too long for me. So I've called and can get my blood checked next week and my doctor will call me with the results.
I always get my blood drawn at the same time (early in the mornings when the lab opens) and without levo, I take this after my blood is drawn.
My two questions;
- What if it is still the same; high TSH and high FT4? If my endocrinologist doesn't know what to do, what blood tests can I ask for? I was thinking FT3 as well (maybe the conversion is what's going wrong here?)
- What can be the cause of this? I can't find much on Google.