I've had bone marrow transplants for a blood disorder so get bloodwoork done.I've noticed that my TSH is falling however is at 2.21 so in norm range. My Ft4 is 12.4 pmol which is borderline normal. Both tsh ft4 have been falling when I look at the trend chart since Oct 23.
Nobody has raised a concern with me yet however I am getting concerned.
I do have unusual symptoms I have difficulties losing weight, I get freezing cold at times temperature intolerant, raised cholesterol.
I also have PCOS which can explain some of this.
I also have horrible pains in my legs with a tendency to swell and feel stressed alot of the time. I get bouts of dramatic low mood.
I don't know what to do, i feel like if I raised this with the gp I'd be laughed out the door! As my labs are in range.
Any insight would be helpful x
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Cookiemunster
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Can you give us the range for that FT4, please? Ranges vary from lab to lab, so we need those that came with your results. But, if the range is 12-22 - as it often is - then your FT4 is very low.
Your TSH may be falling, but it's still too high, ans suggests that your thyroid is struggling. But doctors won't take any notice of it until it drops below range.
TSH is a pituitary hormone, so could the bone marrow transplants be affecting that? Or, on the other hand, skewing the blood test results? I don't know. But it is a point to raise with your doctor. And if your doctor is a decent human being, s/he won't laught your concerns out the door, that would be very unprofessional. Start by talking about your symptoms and then voice your concern about the dropping levels.
High cholesterol does suggest that your FT3 is low, but unlikely you'll get that tested on the NHS (if you're in the UK). So, maybe full thyroid testing privately would be a good idea, if you can.
Your FT4 is only 14.81% through the range, which is very low. It should be at least 50%. But most doctors think that if it's anywhere within the range it's got to be ok. How wrong they are!
But, of course, without the FT3 you don't have the full picture.
What time of day was the blood draw for that test? Do you always get the blood draw at the same time of day? Because TSH changes throughout the day, being highest before 9 am, and lowest around midday.
Even so, with such a low FT4, the TSH should be much higher, so either there's a pituitary problem, or something skewing your results. Are your bloods always done at the same lab?
OK, so your TSH would be pretty low at those times - especially 12:40 pm. But, if they're not done at the same time every time, you can't compare them. So, that could be one reason why the TSH appears to be dropping.
Even so, I think it's worth mentioning to your doctor because your FT4 is so very low.
Oh, OK, but, perhaps it could have had an effect on your pituitary reducing production of hormones, I don't know. In any case, your pituitary doesn't seem to be working correctly - what we call Secondary Hypo. To get a clearer idea about that you would need to test TSH/FT4/FT3, at the same time each time, at about two monthly intervals for a while to see how things progress. If it is Sencondary Hypo, the TSH will stay around the same level, whilst the FT4/3 slowly drop further and further.
Maybe your right, but I will talk to her about my results and symptoms in the 1st instance. She's recently referred me back to gynae and rheumatology due to heavy periods and pains particularly in my legs, I'm also always complaining about fatigue to her, all of these things together are looking highly suspect especially when you throw in my weight and poor response to diet changes, and weird chills I get.
I am in remission for Myelodysplasia, I am also hypermobile and suspect heds also difficult to get dx in the UK! I have also got allergies and tend to be sensitive to side effects and have very strange allergy triggers. My sister has a thyroid issue I don't know what and can't find out. My brother has lupus.
My vit d has been low in the past, I supplement high dose. My ferritin is high due to blood transfusion induced iron overload.
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