I have ME/ CFS, Fibromyalgia, ADD and Hypothyroidism.
For my Hypothyroidism I have been taking 50mcg Levothyroxine T4 and 4 split doses of T3 (6.25mcg x 4 = 25mcg total, which comes as one tablet of Tiromel).
It’s been working brilliantly: no pain, brain engaged, every hypothyroid symptom has gone/ been relieved. Joy!
However, after a few weeks on this dose I begin to feel borderline Hyperthyroid: palpitations, diarrhoea, insomnia etc.
Unfortunately, if I drop down a dose and take one 1/4 less of my T3 pill (so 18.75mcg total) within a day I’m in pain and feeling like total crap.
I’ve tried dropping the Levothyroxine down from 50mcg to 25mcg instead of decreasing the T3, but have the same reaction of going back into Hypothyroidism.
And if I take one higher dose one day and one lower dose the next, it doesn’t seem to balance out: I just feel hyper one day and in pain and hypo the next. It doesn’t feel like it averages out over the 48 hours, especially as I notice immediately when I drop a dose as I’m in bloody agony. It’s so sensitive!
This back-and-forth dosing has been going on for some months as I experiment with finding the right level. Obviously, it’s not good for my thyroid to be yo-yoing like this, and it’s also frustrating to be so close but yet so far!
Perhaps somewhat logically i feel that my ideal dose would be:
1 tablet 50mcg Levothyroxine
3 x 1/4 tablets T3 (so 18.75mcg T3)
PLUS 1/8 tablet T3 (approx 3mcg)
Making approx 22mcg T3 total.
However, there’s no way I can split the already-tiny 1/4 tablets into half again for the 1/8 dose.
This is where it would be helpful to have my GP on board so that I could have a liquid version of T3 for more precise dosing.
But since I haven’t got my GP on board and you’re all infinitely more knowledgeable about the thyroid, have you any recommendations/ thoughts on how to take my meds?
I’m so very nearly there with settling on my ideal dose, but finding it so difficult to get there: I’m either in pain and in bed or pinging off the walls like a Duracell bunny! It’s incredible that such a small slice of tablet can have such a significant effect on my health.
Thanks in advance for your input,