Struggle with thyroxine dosage: I have congenital... - Thyroid UK

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Struggle with thyroxine dosage

Nicolavaila profile image
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I have congenital hypothyroidism and have always taken around 150mg of levothyroxine. At the end of September, after I got my routine check, my doctor told me I was on too much thyroxine and put my dosage down to 100mg. I had no symptoms of an overactive thyroid before but since changing I don’t feel myself. I was just wondering if anyone knew how long it usually takes for the thyroid levels to change?

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Nicolavaila
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helvella profile image
helvellaAdministratorThyroid UK

Nicolavaila ,

Your doctor knows not what he does.

From personal experience, if I take 100 micrograms I become hypothyroid from under-dosing, if I take 125 micrograms I get unpleasant feelings of over-medication. 112 seems to be right for me.

Yet your doctor sees fit to make an adjustment of four times that - and expects you to be OK?

The Roman soldiers really could not be expected to know what they did. Your doctor is being paid enough for it to be expected that he should know. And deserves no forgiveness for his ignorance.

Without even splitting tablets, or getting the 12.5 microgram Teva now available, you could be on 125 / 150 alternate day dosing - average 137. That is assuming you should have had any reduction at all.

[Not meant to be at all "religious" but the phrase wouldn't go out of my head.]

SlowDragon profile image
SlowDragonAdministrator

Highly likely you didn't need dose reduction at all

Do you have blood test results from when on 150mcgs

As long as FT4 and FT3 are within range dose would be fine. You perhaps had very low TSH, which GP's often freak out at

If any dose reduction was required then just 12.5 would have been an appropriate dose to try (125/150)

Now you are probably under dosed, suggest you get vitamin D, folate, ferritin and B12 tested, they are likely to be too low as result

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers. DIY finger prick test or option to pay extra for private blood draw or

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results

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