I left home at 6.30 a.m. got to Victoria and changed onto the Circle Line to Paddington. Unfortunately I didn't know that all tubes would stop at South Kensington due to works, so had to get off and not knowing the area decided to get a taxi. As I opened the door, the opposite door opened at the same time and a man was also getting in. He said he was going to Paddington so we both decided to share. We had a chat and at Paddington he insisted on paying the full fare and I was quite willing to pay my share but he wouldn't accept. So I paid the tip.
The Conference was from 10 a.m. until 4 p.m.
I arrived at Kemble Station at 9.20 a.m - the nearest station to the hotel but after that I had no idea which direction to take and there were no locals around or bus.
I had thought it was a short walk from Station to hotel. Luckily, within about fifteen minutes another 5 people joined and one all the way from Huddersfield. but discovered it was six miles so thankfully I didn't start off before the others arrived as I might still be wondering about the Cotswolds.
As usual TUK and their volunteers had worked very hard to have a successful Conference and it was. It was held at a beautiful hotel in the Cotswolds - the Cotswolds Water Park Hotel.
The hotel service was excellent with two breaks as well as lunch and wide selection of food to suit everyone. There were also Gluten-free products for members if they wished.
The speakers were brilliantand I was particularly impressed by two in particular,
One was Lisa Francesca Nand who had five miscarriages before having two children.
Thanks so much Shaws! I am so sorry to hear of your travel problems. We need to ensure that we look into this more next time. We just took what the hotel told us as gospel!
I'm so pleased you enjoyed it - a lot of people came up to me and told me they enjoyed it. We will be looking at the evaluation forms this week which will enable us to see what people thought about the speakers etc. and guide us for our next conference.
Attendees will be receiving a transcript of the conference and this plus a film of the speakers will be available when they are ready.
We are extremely tired today so I'm only working a couple of hours to check on my emails and sort out a couple of the huge pile of boxes currently sitting in the middle of the TUK office!
I think both you and Louise need a week to revover.
I saw Afshan and it is very exciting that they have been able to collate all of Dr S's Research over the past years and hopefully eyes and brains 'worldwide' will be open to realising that for years they have been going down the wrong road while the suffering continues.
Great conference, great speakers. Extremely well organised. Big thanks to all involved, the hard work and effort. We did stay the night before as the travel time by car was about 3+ hours, with our cup of tea stop it was closer to 4.
Thank you so much for posting the video . The experience given there is so right on and is typical of what most of us do. We do have to become the expert. And what she says about the GPs not be an expert is so true I don’t know if there is an expert for what we have other than we ourselves. The other thing she says is true also we can lead a pretty normal life. “...not 100% but who is?” Made this video give all those out there hope and courage and strength.
We did have two experts. One resigned his licences as he was pursued for doing what he was trained to do but was pursued for not keeping to the 'modern' method of blood tests only and levo alone if diagnosed. Other doctors were also penalised who were all trained around the same time, i.e. clinical symptoms and NDT. He resigned his licence but could advice patients and he himself is hypo.
The other was another doctor who was not afraid of the Endlocrinology and was a Virologist who was sent patients who had 'mysterious diseases' about ten years after levo and blood tests were introduced. He found, by clinical symptoms, that these people were hypo but blood tests didn't reveal this.
He died of a stroke and his patients were distraught as were his staff. He died 3 years ago and his staff and members and family were distraught and believe it was he was hauled before the GMC about 7 times because of the way he diagnosed and treated patoemts but was found that he was doing nothing wrong. Who was reporting this good and brilliant doctor?
Anyway at the Conference I saw his right-hand woman called Afshan who was delighted to tell me that the Vaccine Research Trust (Dr Skinner's) are still up and running and they have spent three years collating all of his clinical studies of research and are on the point of publishing his Research with a leading Professor and Doctor of Endocrinology.
How wonderful. It stirs in me the slightest glimmer of hope that we will find the cause, and hence the cure to all these many autoimmune diseases. In the meantime, thanks to you and the many other contributors to HealthUnlocked. With just a litte bit of knowledge we can and have been leading somewhat normal lives.
Dr Skinner was a plain speaking Scotsman who would not put up with having to follow stupid guidelines and he could see full well the disaster happening for many.
His staff loved him and every working day was joyful with his humour.
They now have to raise funds in order to publish.
At his last appearance before the GMC there were 10,000 testimonials from grateful patients.
It's a good idea to take a taxi and it's fairly reasonable too. Glad to hear that your effort to turn up was compensated and that you had a good time.
I thoroughly enjoyed the Conference and it was a luxury to stay the night in the lovely hotel. Thanks to everyone for organising it. It was great to meet you shaws ( I was sitting next to you) and thanks for all the useful advice you have given over the years. I did feel a bit angry on the way home because of the horrible situation we are in with the medical profession and seeing other people who are clearly suffering needlessly. I suppose there is strength in numbers and I hope we all get there in the end.
Yes, it is nice to meet people whom we only know by a pseudonym.
We will get there in the end if The Vaccine Research Trust (Dr Skinners' staff) who have been working away since his death collating all their (his) research are able to publish the findings. They are very excited but need the cash now to do so.
I saw Dr Skinners' right hand woman, Afshan Ahmed and the Chairmanm Judy Cheraton_Rice fleetingly at the Conference and the fact that they have been assisted by a leading Professor and Doctor of Endocrinology is very positive. This is a sentence from the article:-
These studies have been described by endocrinologists as 'of worldwide importance to medical science' because we have unique evidence that many patients.......................
It goes on to say that "we can Change the World with this evidence - by publishing these clinical findings".
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