Thyroid UK

Anybody With Palindromic Rheumatism Out There?

Hi there. I've recently been diagnoses with Palindromic Rheumatism. I was wondering if anybody else has it or anything similar?

It would be nice to know there are others out there and if anybody has any info or tips I would very much appreciate it.

One thing I would be interested in knowing is if anybody has found any painkillers or other remedies for the pain. It's usually not too bad for me so I don't want to try any long term medications at the moment, but I will get the odd time when I really want some relief. I've tried paracetamol, ibuprofen and an ibuprofen based gel so far and none of them seem to help.

Thanks for any responses even if it's just to let me know I'm not alone. Hope you all have a wonderful day/ night. :)

3 Replies

This seems to have ended up in the wrong forum somehow. Sorry guys.


No worries -- you piqued my interest, as they say...

Wishing you well!


Reading your post of 3 months ago I see you were asked for results which you were going to post ! I have looked 😊 How much VitD are you taking ? - Doctors often prescribe too little - what was your result when diagnosed very low ? Do you know your FT3 level ?

I find B12 injections great at pain relief. Also having a LOW T3 can be the cause of pain. Are you gluten free to treat the Hashi's ? - and healing the gut prevents inflammation elsewhere in the body.

So these are the results you need - TSH - FT4 - FT3 - B12 - Folate - VitD - Ferritin.



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