HELP! Doctor want prescribe T3 - Where can I bu... - Thyroid UK

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HELP! Doctor want prescribe T3 - Where can I buy online or get a Private Prescription in London?

VegB12 profile image
15 Replies

My T3 is very Low and still the doctor will not prescribe it - Where can I buy Online or get a Private Prescription in London ? Please PM

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VegB12
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Clutter profile image
Clutter

Welcome to the forum, VegB12.

Members are more inclined to share sources with new members who include some background about their illness such as how long they’ve been diagnosed, recent thyroid results and ranges, and current thyroid medication.

VegB12 profile image
VegB12 in reply to Clutter

This is a sample from new blood report - The low Range but some still borderline and doc says NO!

T4 TOTAL THYROXINE 68 nmol

FREE THYROXINE 12.9 pmol

free T3 3.6 pmol

MY TSH IA LOW 1.93 mu/l GUIDE BEING 035-5.50MU/L

thyroid stimulation hormone 1.97 mIU

TESTORONE 4 NMOL/L VERY LOW - DOING ANOTHER TEST

FERRITIN 33 ug/l LOW GUIDE BEING 30

haemoglobin 113 g/l

MCV 79.7 FL

Clutter profile image
Clutter in reply to VegB12

VegB12,

TSH is a little high and FT4 12.9 is usually low in range but I would have to see the lab ref range to be certain. FT3 3.6 could be higher. Have you asked for Levothyroxine dose to be increased? That would raise Free thyroxine and Free T3. A lot of CCGs and Heath authorities have banned prescribing of T3 and those that haven't usually require a NHS endocrinologist to recommend it before GPs can prescribe.

The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.4 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email louise.roberts@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

Ferritin is low. Ferritin is optimal halfway through range and at lease 70-100. You can raise ferritin by supplementing iron taken with 1,000mg vitamin C to aid absorption and minimise constipation.

Without the lab ref ranges it is impossible to tell whether haemoglobin and MCV are normal or not.

VegB12 profile image
VegB12 in reply to Clutter

I have edited with TSH and other blood results

Clutter profile image
Clutter in reply to VegB12

VegB12,

Your TSH is a little high. Most people on Levothyroxine do better with lower TSH and higher FT4 and FT3.

shaws profile image
shawsAdministrator

All doctors and endocrinologists have been told not to prescribe T3 any more due, I believe to the exorbitant cost to the NHS.

You can sign the Campaign that TUK are running and I'll give you a couple of links:

healthunlocked.com/thyroidu...

This is an excerpt from second one:-

Liothyronine is not routinely recommended for prescribing as it has a much sorter half-life and steady-state levels cannot be maintained with once daily dosing [4].

The combination of levothyroxine and liothyronine, in both non- and physiological proportions, has not consistently been shown to be more beneficial than levothyroxine alone with respect to cognitive function, social functioning and wellbeing. The variation in hormonal content and large amounts of liothyronine may lead to increased serum concentrations of L-T3 and subsequent thyrotoxic symptoms, such as palpiations and tremor [4].

There is currently insufficient clinical evidence of effectiveness and cost effectiveness to support the use of liothyronine (either alone or in combination) for the treatment of hypothyroidism [5,6].

Overwhelming evidence supports the use of thyroxine alone in the

treatment of hypothyroidism, with this usually being prescribed as levothyroxine [2].

Liothyronine is available as licensed (and unlicenced) 20microgram tablets and unlicensed 5microgram tablets. Many other liothyronine-containing preparations (eg. Armour Thyroid) are also unlicensed, therefore the safety and quality of these products cannot be assured.

formulary.glos.nhs.uk/PageF...

The following was sent to the BTA and RCoP and despite three yearly requests for a response they never did and Dr Lowe died. He was also an adviser to to Thyrioduk.

thyroidscience.com/Criticis...

Dr L would never prescribe levothyroxine as he said it became successful only due to monetary rewards to the professionals.

Also many researchers have shown that T3/T4 makes many feel better. If someone is good on levo they wont be looking for another choice. So it is us who have difficulty with levothyroxine want some help to relieve all clinical symptoms.

Those who have information about where to source T3 will respond by private message, so I'll close the post for answers on the forum.

Shelley1954 profile image
Shelley1954 in reply to shaws

There are some GP's & endos still prescribing, but for how long!?

shaws profile image
shawsAdministrator in reply to Shelley1954

It may depend upon the doctor or endo himself. Particularly if they have hypo themselves or know family members who may not have recovered with levo.

cthaffy1956 profile image
cthaffy1956 in reply to shaws

I am in Australia, and I can get T3 from any compounding chemist here, thankfully.

shaws profile image
shawsAdministrator in reply to cthaffy1956

That's great and I wish it was so easy in the UK, although not as expensive as the licenced one is.

cthaffy1956 profile image
cthaffy1956

Mine is not cheap...I pay $70 for 100 capsules, although I can specify the strength... 10, 20 or 30 mcg for the same price :)

shaws profile image
shawsAdministrator in reply to cthaffy1956

Its excellent you have a choice but I think I would order the larger dose and split it, making it cheaper in the long run. My tablets are 25mcg only and when I take 1 3/4 dose, I split one tablet and have had no problems.

VegB12 profile image
VegB12

My Doc Referred me to and Endo at Charring Cross Hospital before he prescribes ANYTHING - So 26th October is my Endo appointment

Gismo333 profile image
Gismo333

Hi you can get it from <redacted site> I have been using it for years. You have to pay via a Bank transfer to Chase Bank, it's very easy

helvella profile image
helvellaAdministratorThyroid UK in reply to Gismo333

When you signed up to this forum, you were asked to agree to the guidelines. Your response here breaks guideline 25 so has been edited to make it compliant.

25. Do not post advertisements, links or information of any sort whatsoever, on where or how to obtain UK prescription only medications without prescription. This includes online pharmacies who issue 'prescriptions' on the basis of the completion of a simple health questionnaire.

healthunlocked.com/thyroidu...

It probably is a bit late as well - the request was posted over a year ago.

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