Hi, this is my first time posting so sorry for the long post.
I was diagnosed as having hypothyroidism 3 years ago and I was placed on 50mg of Levothyroxine which I have been on ever since. Since then I have felt increasing worst. The joint pain and weight gain (3st since starting this medication and 2st and symptomatic 5years prior to being diagnosed) have continued to be major problems for me. I did have blood tests to check dosage on various occasions but I have always been told by various GPs and Endos that my results are normal and I am on the correct dose despite my continued symptoms. I hadn't found this website then and trusted what they said so this has been going on for a while!!
Symptoms - significant weight gain, severe joint pain, edema in right calf, intolerance to cold, memory issues, heavy sweating, tiredness, sore throat, pins and needles, low body temperature, low blood pressure etc. I have also been recently diagnosed as having PCOS and told to diet and exercise.
I do not have Hashimoto's nor do I have the DIO2 gene as confirmed by testing. My head MRI, throat ultrasound and heart tests were all clear. I am gluten free due to food intolerances and find my IBS stomach symptoms have improved with this despite being negative for Coeliac. I have a good well balanced diet and exercise despite this being painful due to the joint pain but no matter what I do I cannot lose weight, in fact it just continues to go up, usually in rapid short bursts. I even tried Orlistat (anti obesity drug) for 4 months and lost no weight so they won't re-prescribe.
I've seen several GPs (and changed surgery) but they all just tell me I'm fine and ignore my complaints or tell me I'm depressed and the symptoms are in my head! My current GP is now questioning whether I should have been diagnosed with hypothyroidism in the first place. She mentioned my original tsh level (I don't know what it was) but didn't expand further. She is thinking of taking me off my medication altogether but has no intention to investigate and give me an answer as to why I have so many symptoms then - I'm panicking now!
I have long suspected I am just not suited to levothyroxine (tried all 4 brands) and I have asked many times to try something else but have been told no. I even tried coming off Levothyroxine earlier this year but after two weeks I felt so awful I had to go back on it as I could barely move the joint pain was so severe.
I have now paid to have a private Endo appt with a thyroid and weight management specialist to try and improve my health as I can't go on like this. I'm waiting to have some further blood tests done and to check cortisol levels etc so fingers crossed as the only suggestion the GP gives me is to pay privately to have gastric sleeve surgery to address the weight which I really don't want to do. I had always been really skinny (7st) up until I started having symptoms 8 years ago, I'm 36 now and over 12st - I'm only 5ft!
I know people on here have much worst results than me and mine are "within range" but I'm just so fed up with the constant GP battles. From what I've read on here already I think I maybe under medicated and would appreciate other people's opinions and whether they think the same? Maybe I need to cut the GP out completely and try self medicating with NDT myself. My recent blood tests are attached. Thanks 😊