Log in
Thyroid UK
92,043 members106,304 posts

Muscle and bone pain

Hi all. I've been on NP thyroid for 18 days now. Some of my symptoms are gone, but some aren't. Have back pain all on the left side (shoulder blade, mid back at bra line, and flank). I also have left rib pain, freezing feet and ankle pain, horrible fatigue, etc. I can't help but go to the worst and think I have cancer or something horrible. I guess I'm just looking for people with thyroid issues that have had the same pains and symptoms.

12 Replies
oldestnewest

When I first began levothyroxine, I couldn't believe I could feel that unwell as it took such a long, long, time to be diagnosed. I was undiagnosed and had treatment for symptoms but not for hypo until my TSH was 100 and only due to a First Aider's suggestion was I diagnosed. Hopefully as your dose is gradually increased you will begin to improve.

I couldn't even step onto a pavement or move without all muscles being painful.

Reply

Thank you so much! I lay in bed in pain and think this cannot just be due to my thyroid. I have health anxiety too so that doesn't help.

Reply

Anxiety is one of the clinical symptoms of hypothyroidism and I'll give you a link and I bet you can tick off a few more. Hopefully as your dose is increased your pain will be relieved.

thyroiduk.org.uk/tuk/about_...

2 likes
Reply

This is useful thank you. I have about 75 percent of the symptoms, have just printed to take to GP next visit to say still getting despite medication,

1 like
Reply

hi, I'm also on treatment for hypothyroid and found with treatment the itching was gone and I felt less sleepless. However the same as you I get pains in the same areas. The only thing showing on my blood tests so far for this is severe vitamin d deficiency which actually gets better when I'm not taking the thyroid meds, so it's kinda which is the lesser of the two evils, as my bp goes high without the thyroid meds and fultium d plus my allergy meds I've chosen to go back to being on them and just take painkillers in the morning as I also get carpal tunnel syndrome. Have you had your vitamin levels tested any of the Vit d, b12, and iron can cause the pains I believe. if you are treated for these too could help alleviate your pains. best of luck, Also, I have changed to a low-carb, high-fat diet and this really does help.

1 like
Reply

I am on the correct diet, however, my vitamin D and ferritin are low, and I'm on D3 and iron for those. Maybe as they come up, it'll get better. I'm just SO frustrated. I guess with the thyroid meds, I expected a much faster recovery.

Reply

I can understand. It does take time. Have you had your t3 measured ive geard that can make a difference for some people with hypothyroid if the levo is not working as well as should be.

Reply

Yes I'm on NP thyroid. It has T4 and T3 in it

1 like
Reply

I have similar problems but not able to get any help for "high normal" 4.99 TSH but with TP antibodies showing 206. Together with extreme pain down my left underarm/breast; upper bloating all day but worse travelling in a car; knee, toe and hand joint pains; tiredness, heat and cold intolerance, anxiety and most symptoms of Hypo. My specialist will not help me while my TSH is "normal" despite others in my family with thyroid deficiency, although he admits I have most of the symptoms of Hypo. My blood pressure is unusually raised as is my cholesterol. I feel generally unwell. My osteopath and a breast cancer centre have said it is muscular/skeletal pain but I have not been injured. I have had tests for everything else imaginable and all negative. I feel I have no option but to see a private specialist instead or treat myself with a low dose of thyroid hormone. My own GP says there is nothing more she can do. If anyone has any other answer to this problem please let me know. I am not on any other medication at all and this has been going on for 18 months now so I am feeling at the end of my tether. Any help appreciated.

Reply

the thyroid secret 9 part documentary series by dr isabella wentz has just been repeated last weekend, I have purchased the series that i access online, it is most definitely the best thing that you could see - you can get to the route of your health issues, and not wait for things to be worse - her books are brilliant too but the series if amazing.

Reply

I found out since my last post a year ago that I am in perimenopause and that's what threw my thyroid off. I got on hormone therapy last year in September and was able to come off my thyroid medication. Stabilizing my hormones took care of my thyroid issues.

Reply

We are all different, it took me 5 years to feel improvement, it's a very long story, I slept 20hrs per day, could not walk, spent £000's saw 10 specialists which included 4 endocrinologists (2 of which were professors) and yes I felt better but still had some symptoms - the deep aching but hey presto - what got rid of them? a clean gluten and dairy free diet. I lapsed once and ate bread and pastry and the pain returned.

I have mentioned below the dr isabella wentz series - if only EVERYONE could watch this. I highly recommend both of her books which are for sale on Amazon and she has a new book due out in April 2019 too. Everything she says makes total sense.

Reply

You may also like...