First time posting to this forum.
I have had hypothyroidism for more than 24 yrs now and have worked my way up from 25mcg to 325mcg of levothyroxine.
For the last 3 yrs I have been steady and TSH has remained within 'tolerable levels'.... until last week.
Last week I had a blood test result of 29.18 !!!
Approx 3 yrs ago I saw an Endocrinologist, (the last time my levels spiked badly and I went up from 300 to 325mcg) who, at that time advised if my levels were to spike again, it was unlikely I could go any higher on levo, and alternatives would need to be considered. I asked at the time about T3, but of course was met with the "its all about the cost" reply.
He was, nevertheless, an excellent consultant and talked me through a lot of possible options I could try with regards to when to take my meds, and options for changing some of the other meds I was taking for my other conditions.
I have spent the last 2 weeks in and out of hospital for a Neuro issue and 2 Doctors I saw on Friday are both very concerned and have requested an urgent Endo referral.
(Im not sure how 'urgent' it will be or when I will get to see someone, so in the meantime I want to gather information and go to the appointment well armed with knowledge)
Im also aware that the fantastic Endo I saw previously has moved on to another hospital and Im concerned the replacement wont be as helpful, as some comments to a post I made on twitter would imply the clinic is now useless. Of course I understand everyone has different experiences of clinics and we are all different when it comes to our other conditions, medicines and history, but I cant help feeling a little anxious.
I was wondering if anyone has been in this position and actually managed to get T3 treatment or a better therapy than Levothyroxine?