Scared of adding/taking T3: Hi I am new, I have... - Thyroid UK

Thyroid UK

140,948 members166,081 posts

Scared of adding/taking T3

Zo88 profile image
Zo88
8 Replies

Hi I am new, I have thyroid peroxidase antibodies of 337 (<34) and diagnosed hypothyroid in 2013. My previous endo identified a clinical need for me to have T3 added to my levothyroxine but my current endo told me the T3 is not a safe medication for me to take.

I was mentally clearer on T3 and made fewer mistakes and I am debating with myself to go back on it. I have 2 months of it left, current results below though I am due a retest at end of September.

I realise I run the risk of being struck off by my current endo since he disapproves of me taking T3 but because of my symptoms returning I feel I need to go against him. Should I?

Thanks

(150mcg levothyroxine)

TSH 0.04 (0.2 - 4.2)

Free T4 20.8 (12 - 22)

Free T3 4.5 (3.1 - 6.8)

Written by
Zo88 profile image
Zo88
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Clutter profile image
Clutter

Zo88,

Better to feel well by selfmedicating than to please the endo who is not getting you well I think.

I felt well enough with FT3 4.5 on Levothyroxine and T3 but I know a lot of people need FT3 higher in range to feel well. As long as you keep FT3 <6.8 there should be no danger to health.

There have been two long term observational studies showing Liothyronine is safe.

healthunlocked.com/thyroidu...

thyroiduk.org.uk/tuk/resear...

Zo88 profile image
Zo88 in reply toClutter

Hi I have constipation and tiredness and feeling cold as well. So I would like to add T3 back in

Clutter profile image
Clutter in reply toZo88

Z088,

Hopefully the T3 will help.

humanbean profile image
humanbean

my current endo told me the T3 is not a safe medication for me to take.

he disapproves of me taking T3

I'm going to stick my neck out here and say I suspect what your endo disapproves of is the idea that his department may end up footing the bill for your T3 prescription. Endos must be aware that many people feel a lot better with T3 added to their meds, so I suspect he is pretending ignorance for his own reasons.

You basically have two choices :

a) Do what your endo says, knowing that you will continue to feel less well than you could. But then why would you want to see a doctor who deliberately keeps you feeling less well than you could?

b) Ignore the endo, start buying your own T3, and go it alone. Many of us do.

greygoose profile image
greygoose

He's either very ignorant or lying - like most of them, and I can never make my mind up which! T3 is not dangerous at all, as long as you don't take to much. In a healthy person, T3 is made in the body by converting T4. Why would your body make something that is dangerous for you? Have they ever considered that? Or do they just think we're all so stupid that we won't think it out for ourselves and question is? The latter, I believe!

Zo88 profile image
Zo88 in reply togreygoose

Yes I have been thinking the doctors know best but probably not in this case.

greygoose profile image
greygoose in reply toZo88

Not where thyroid is concerned, no. Too many vested interests!

T3 is perfectly safe. If your previous endo said you had a clinical need for it, I suspect that you do. What's the point of feeling worse just to please your endo, who is probably influenced politically by the cost of T3 to the NHS (as they have a poor purchasing policy which prevents competition and allows compnaies to fleece than)

Not what you're looking for?

You may also like...

Adding T3

I saw my Endo a couple of weeks ago and explained that I had improved but feel that I still have a...
Chippysue profile image

T3

Newbie, previous endo put me on T3 added to my levothyroxine since I don't convert T4 to T3,...
Summer601 profile image

Please help I had my T3 taken away and endo is saying I have general anxiety disorder (advised to repost)

I am new and I really need help. Before I start crying here is my story - I was diagnosed 10 years...
Natasha1234 profile image

ADDING T3

Hi I am waiting to hear from Endo about starting adding t3 any day now.My GP not sure about it at...
susiebow profile image

Adding T3 to T4

Hi all I have had graves disease for 30 years was hyper and on carbimazole in between periods of...
misfitjones profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.