Research paper on why TSH shouldn't be considered - Thyroid UK

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Research paper on why TSH shouldn't be considered

Lindsayf profile image
10 Replies

Hi all

I'm seeing a new Endo (deep joy) and I know he will be looking at my TSH level. In March it was sitting at 0.01 and I was told that if it hit 0 then they would have no choice but to look at my meds :(

I'm on 100mcg of Levo and 25mcg of T3 and they are testing my FT3 and FT4.

Does anyone have any links to papers to show that FT3 should be the only result that matters? Or anything to help get them to worry more about my FT3 levels then the TSH levels...

thanks :)

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Lindsayf profile image
Lindsayf
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diogenes profile image
diogenesRemembering

A review you might try is:

Homeostatic Control of the Thyroid–Pituitary Axis: Perspectives for Diagnosis and Treatment

Rudolf Hoermann, John E. M. Midgley, Rolf Larisch and Johannes W. Dietrich

Review The long-held concept of a proportional negative feedback control between the thyroid and pituitary gland requires reconsideration in the light of more recent studies. Homeostatic equilibria depend on dynamic interrelationships between thyroid ...

Published on 20 November 2015

Front. Endocrinol. doi: 10.3389/fendo.2015.00177

To get the whole text. Type in "Frontiers in Endocrinology". On the web page click on the second item down. When the page comes up, select "most read" and the article will come up. There are two: the one you want is the second.

Lindsayf profile image
Lindsayf in reply todiogenes

Thanks :)

s962 profile image
s962

Interested to know how you got on?My review due.same issue always look at THS low Because am onT4.always want to reduce it.even though T4 in range and my T3 is low.I paid to have full thyroid panel etc and even though my results were analysed as T3 not getti g into my cells (convertion issue)I don't hold out much hope of being given a trial of T3.Did you have to fight to get it?

Lindsayf profile image
Lindsayf in reply tos962

Hi

I’m seeing him this Friday and I’m not looking forward to it... I’ve out on 6lbs and I’m knackered and I have this funny feeling he will say it’s because of my TSH and not my low level FT3.... I’m going to call this hospital this morning and request my results prior to my appointment but not holding out much hope on that. I think he will want to reduce my Levo!

s962 profile image
s962 in reply toLindsayf

That's their answer to everything!Good luck.I m in Norfolk they are rubbish here😐

Lindsayf profile image
Lindsayf in reply tos962

Yep so am! I go to the JPH

s962 profile image
s962 in reply toLindsayf

I went there.rubbish.had a good gp at time.she was hypothyroid herself she over ruled them.wish still had her.are you in the thyroid support group Norfolk? Part of the ITT campaign.they are brilliant.have healthwatch on board.theres a meeting tommorow in Norwhich with CCG s.i m going to try and go.

Lindsayf profile image
Lindsayf in reply tos962

No I’m not but would be interested... I can’t attend tomorrow but would be interested to find out where I can get the support group details for Norfolk?

s962 profile image
s962 in reply toLindsayf

Sorry just seen this xx there is a facebook page . thyroid support group Norfolk.its a closed group but you just request join.If you can't find it ask the ITT (improve thyroid treatment)facebook page to point you to it.any problems if you want me to add you I can just p m me your name xx

Lindsayf profile image
Lindsayf in reply tos962

I’m not on facebook

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