Goitre: So here it is, my friend, my rubber ring... - Thyroid UK

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Goitre

Irch85 profile image
12 Replies

So here it is, my friend, my rubber ring..

My boyfriend jokes and says.. am I going swimming? jokes aside though, this thing is horrible.. it's tight, it's painful, it's annoying

Anyone else in my boat?? 🛶

Is this large? Normal size? Average??

you're the experts please please enlighten me

Cheers

Emma x

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Irch85 profile image
Irch85
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12 Replies
Marz profile image
Marz

I am not a Doctor - but I can SEE you have a swollen thyroid/neck and the two tell-tale lines going around the neck that point to a thyroid problem. A Greek Doc I once heard of - immediately knew when someone had a thyroid problem due to the two necklace like wrinkles on the neck - they can be anywhere on the neck. Of course most Docs go by blood tests and that is it ....

I believe you have had a goitre diagnosed with NFA - I would return to your GP. Do you have test results with ranges to share with us ?

Irch85 profile image
Irch85 in reply toMarz

Hi

No FNA was performed last year just ultrasound.

TSH is normal and within range, I've had a Ultrasound last year and they dismissed the enlarged thyroid as no nodules found.. the doctor/consultant said it was just fat and not enlarged..

It's clearly enlarged I'm waiting for referral back to ENT.. my doctors have dismissed thyroid problem as within range..

I'm so frustrated and angry with this lengthy process..

I have lost pubic hair, hot/cold flushes, exhausted, chronic exhaustion to be fair..

my glands are still swollen after 6+ weeks, painful and tight around my Goitre..

The only elevated blood was cholesterol 5.3

I know I need more bloods for thyroid to rule out autoimmune thyroditis which is what I suspect I have, just worried my GP will refuse bloods

Thanks

Emma

Marz profile image
Marz in reply toIrch85

Is there any chance you could have your test done privately through Thyroid UK ?

thyroiduk.org.uk/tuk/testin...

Either finger prick testing or otherwise.

My NFA referred to No Further Action - FNA I know is Fine Needle Aspiration.

So what actual thyroid tests were done ? - do you have the results ?

Irch85 profile image
Irch85 in reply toMarz

Yes I'm considering private tests, sorry Marz misinterpreted your message regarding NFA

Tests are as follows:

TSH: 1.53

Plasma Fasting Glucose: 4.2

ESR: 20

Cholesterol: 5.3

LFT: 43

Plasma C: 4.0

Total White Cell Count: 9

RBC: 4.64

No T3 or T4 done or extra for thyroid functions etc

I presented with fatigue, sore throat, swollen glands these have persisted 5+ weeks and previous history of enlarged thyroid leads me to believe I have thyroid problems x

Marz profile image
Marz in reply toIrch85

So no correct thyroid testing - this is what you need - TSH - FT4 - FT3 and Thyroid Anti-bodies TPO & Tg.

Did you look at the link for Private Testing ?

You need all the information .....

Irch85 profile image
Irch85 in reply toMarz

No, I feel like I'm being ignored so the private testing looks like the way forward xx

angelaat27 profile image
angelaat27

My auntie used to have a huge one! Much bigger than yours. She went into hospital for something else and the surgeon had a fit. I don't know what they did but it subsided over a few months. Long time ago.

SlowDragon profile image
SlowDragonAdministrator

If getting private blood tests then choose to also test vitamin D, folate, ferritin and B12

Medichecks Thyroid plus ultra vitamin tests all these

DIY finger prick test or option to pay extra for private blood draw

All thyroid tests should be done as early as possible in morning and fasting

Highly recommend private testing - 100's on here have had to resort to this

Some people seem to take medication to reduce the size of the thyroid. No doctor ever told me about it so I cannot advise about it.

My first goitre grew inwards and started to strangle me, but that does not yet seem to be happening to you. Apart from medication as mentioned above, there is little chance of you receiving any variation of the 2 options of surgery and RAI treatment until you have much more serious symptoms. You must get your doc or endo to check you out regularly.

It took mine several years to reach the stage of getting agreement for surgery at which point I could hardly move around and had suffered several bouts of pneumonia due to the inability to breath properly.

Irch85 profile image
Irch85 in reply to

I do feel like I'm choking on a daily basis, I have a hoarse voice constantly and I have the feeling of being strangled but to be honest although I know it's not normal I'm kinda used to it..

Would the doctor not consider removal due to its size?

That's something you will have to take up with the doctor. If yours is growing outwards rather than inwards it could take some considerable time before the surgeon would consider it appropriate to do his job.

If you have read a number of threads on this forum you will start to believe that our doctors are completely useless and that a trained chimpanzee could make a better job of controlling our thyroid afflictions. To a certain degree this seems to be quite true, but from my personal experiences of the surgeons who have to take on the tricky job of ridding us of part, or all, of our thyroids, I have a great deal of praise. In fact I think they are quite wonderful. It is just that I would not be too keen on using a private hospital, they may very well use some of the very same surgeons they have in the NHS hospitals, but they are judged by the hospital on their ability to earn cash. An NHS surgeon in an NHS hospital was unprepared to complete my operation for a total thyroidectomy as he felt its complications were beyond his abilities - sewed me back together again and sent me home complete with my untouched multinodular goitre. I have 3 scars on my neck but I couldn't care less, I survived! Another surgeon completed the mighty task most successfully. Would the first surgeon have continued the op if his wallet had been involved???????

Irch85 profile image
Irch85 in reply to

I do believe that our NHS do a fab job on a daily basis, I'm just frustrated at living through this hell of my unpredictable thyroid...

I'm not sure if this is anxiety or a real symptom but of late but I'm having pins & needles and numbness in my left arm, anyone else with a goitre experience this??

maybe I need a new thread to ask this question?

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