Really struggling with Levythyroxine symptoms

[Myonlysunshine]

Hi again, I am at one week (i know it probably sound ridiculous!) with taking 50mg Levo and feel absolutely terrible. I feel like I have severe morning sickness, my head is killing, i can't stay awake, I'm very teary and my face has puffed up and my hair and face are incredibly greasy which I've never had before! (Obviously I can deal with those things) I have a lot of nutrient deficiencies too which I'm starting work on in the next few weeks but with very little energy and a lot pain I have anyway it's making it harder for me to deal with this.

I'm back at the private GP (who diagnosed me) tomorrow for an iron jab so will mention how I am, but realistically I know everyone is difficult but I don't know whether I can cope feeling like this, whether I need to suck it up and continue or whether is right for me..I know its really early days and I've had the diagnosis of 'M.E.' for 12 years so I know i won't get better over it either..sorry for the mixed rant I'm all over the place and feel very down with it all 😰

[Hidden]

Some people just don't do well on Levo. That's why there's a large contingent of thyroid patients taking NDT (natural Dessicated Thyroid). It may help to read up on this treatment to familiarize yourself with it. But it is often not prescribed do to sheer ignorance. Most people in the U.K. self medicate on this treatment from what I understand as it is hard to find an Endo who will prescribe. There is lots of info on the topic here as well if you search "NDT".

stopthethyroidmadness.com/n...

There are also different brands of Levo so it may help to look at which one you are taking and see about trying another first.

[Myonlysunshine in reply to Hidden]

Hi there Rusty! I've had a read up on NDT and it appears I might not be a good candidate for it as I have VERY low iron. I have a Ferritin level of 8 and I'm having an iron injection tomorrow, but its always so low and more so now I have Fibroids too. I'm awaiting a uterine ablation in autumn luckily x

[SeasideSusie Remembering]

What brand of Levo are you on? Many people have problems with Teva brand.

[Myonlysunshine in reply to SeasideSusie]

Hi Susie, yes it is Teva should ask to try another do you think?

[SeasideSusie Remembering in reply to Myonlysunshine]

If you can manage it, maybe give it a bit longer and if it continues ask for a different brand. If it's really bad you could see if you can have another prescription forms different brand.

[Myonlysunshine in reply to SeasideSusie]

I will, il try another week and see how it goes thanks for your help 👍🏻

[Babette in reply to Myonlysunshine]

I agree with SeasideSusie. It's worth trying Mercury Pharma and Wockhardt brands to see whether they're any better. I recently yellow carded Teva levothyroxine.

[Clutter]

Myonlysunshine,

Some people are sensitive to Levothyroxine when they first start taking it. Symptoms usually improve during the second/third week but if they're really intolerable halve the dose for a week or two and see whether the symptoms improve.

[Myonlysunshine in reply to Clutter]

Thanks clutter il try another week and see how it goes..I'm journaling it all to make it easier for me to know if there's any progress..i don't want to appear too impatient I just feel soooo bad, but I know il get there in the end..il keep positive 👍🏻