Hi everyone. I was diagnosed with TED in March this year, shortly after having a total thyroidectomy. I'd been diagnosed with hyperthyroidism 18 months previously and as my condition was never stabilised on carbimazole a total thyroidectomy was deemed to be appropriate. I'm also a long term insulin dependent diabetic. I am really struggling with TED. It's without doubt the worst thing I have ever experienced, and I have had my challenges over the years. My endo started me on 35mg of Prednisolone daily upon diagnosis, but to be honest I feel like it's done me more harm than good. I'm now being weaned off the steroids, currently on 5mg alternate days, and I feel worse than ever. I've gained 4kgs, have steroid moon face, a broken foot (literally stood up and bone fractured) erratic diabetic control, feelings of depression and mood swings, and my eyes feel and look worse than ever. Today I woke up and thought I can't deal with this any longer. I have a very supportive family, but I feel so low. Every morning I dread waking up and feeling the pain in my eyes. Most of the time I can't see clearly, I can't exercise or go far because of my broken foot and life feels very bleak right now. I've gone from being an indepedent person who deals with whatever life throws at her, to a wreck of a person who doesn't feel that she has a life worth living.
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