Went GF/ Soy Free & Caffeine Free and antibodie... - Thyroid UK

Thyroid UK

137,137 members160,818 posts

Went GF/ Soy Free & Caffeine Free and antibodies gone through the roof!

eureka74 profile image
6 Replies

Hi all,

Has anyone any experience of this?

I cut out Gluten, Soy and Caffeine to try and help my antibodies which were at 630 reference range of 0-60.

I've just been re-tested and my antibodies are now >1300!!!

The only other difference is my doc agreed to increase my T3 from 10mcg EOD to 20 every day.

Could the T3 be making my antibodies worse? I didn't think they had anything to do with it but now not so sure. I was expecting them to either stay the same or reduce because of going GF.........so very confused and a little scared at how high my antibodies are!! :-(

Thanks in advance xx

Written by
eureka74 profile image
eureka74
To view profiles and participate in discussions please or .
Read more about...
6 Replies
shaws profile image
shawsAdministrator

I believe antibodies wax and wane. You might find the following link of interest and this is a short extract:-

In practice, because thyroid antibodies levels tend to wax to wane, they may not always show up as being abnormally high in a blood test – the trick is to catch them when they are high!

In Dr Bo Wikland's clinic in Sweden thyroid problems are routinely investigated using the Fine Needle Aspiration (FNA) technique. Dr Wikland's experience, as published in The Lancet (2001 and 2003), is that FNA is actually very valuable in the demonstration of thyroid autoimmunity; superior in fact to antibody testing. It is interesting to note that Dr Wikland has noticed that when the TSH level is suppressed, thyroid antibodies will be suppressed also, so here is a further argument against TSH as the golden measure of thyroid health (discussed in the first 'Myths' article).

thyroiduk.org.uk/tuk/thyroi...

Clutter profile image
Clutter

Eureka74,

T3 20mcg added to Levothyroxine is likely to suppress TSH which can be helpful in reducing thyroid and antibody levels. I can't think of any reason why T3 would cause antibodies to rise.

How long have you been g-f? It can often take more than a year g-f before antibodies reduce and sometimes g-f makes no difference. I'm not aware that caffeine has any effect on thyroid antibodies.

eureka74 profile image
eureka74 in reply to Clutter

Thanks for your reply......I think I'll just have to chalk it all up to "who knows" I didn't feel any better GF (4-5 months) and don't think it's worth continuing for another six months as I started to feel better once my T3 was increased. Was just shocked at how high my antibodies were. My TSH is 0.01 so doubt that will make a difference to my antibodies either.

marigold22 profile image
marigold22

Please see my latest post - healthunlocked.com/thyroidu...

greygoose profile image
greygoose

Nothing to be scared of. Antibodies fluctuate all the time. Just because you've never seen them that high before, doesn't mean they haven't been that high before.

I don't think soy has anything to do with antibodies - either in a good or a bad way. But, it's good you given up the nasty stuff! Because it will keep you hypo, by stopping the uptake of thyroid hormone by your cells.

researcherUK profile image
researcherUK

How long have you been GF?

The immune response to gluten can last up to 6 months after the last time you had gluten. It takes longer for the body to switch off the state of fight/alert/attack and even longer if you are also coeliac.

You may also like...

Free T4 gone through the roof. Advice needed please

was taking 100mg levo and 12mg lio. I reduced lio and increased levo (by 12.5 mg) to try and even...

Antibody testing and Gluten/Soy free diet

I want, including both antibodies and T3). I have been trying gluten and soy free for the past...

GF / dairy / soy diets

managed to stick to the Gluten bit (woop!), but I'm also trying to cut out Dairy and Soy which I'm...

Cortisol through the roof !!! Please help

understand my latest adrenal saliva test results, it's scaring me! I've been ill for almost a...

Gluten and soy free diet...

So I’m doing the gluten free diet and avoiding soy like the plague. I’ve downloaded the coeliac uk...