Hi, can anyone help me?
My thyroid blood results were up and down since I became very unwell 2.5 year ago. Levothyroxine, (on a stable dose, for years, previously), became frequently altered.
I was diagnosed sjogrens syndrome a year ago. Still, I felt my thyroid symptoms were making me feel worse.
My consultant for Sjogrens kindly tested bloods and referred me for an ultrasound of neck.
Tsh O.O1 (O.27-4.20).
Thyroglobulin 28 H.
Thyroid shrivelled mass (sonographer observation) .
I began taking adrenavive 11, one a day, (6 weeks ago), for adrenal fatigue.
Dr P advised lower Levothyroxine dose from 75 to 50mcg a day, same time.
I then received a letter from Dr P, suggesting, start adrenavive 11, 2 capsules a day and begin metavive 11, whilst stopping levothyroxine.
I didn't get a chance to start the new regime as I became very unwell.
One week ago, I suffered utter fatigue, abdominal discomfort, so awful.
4 days ago, I was literally wiped out! Abdominal pain so awful, I did not take adrenavive 11, that day (nor last few days). As it happened, I attended for a blood test same day my abdomen pain started.
By evening time, 4 days ago, my temperature increased, symptoms worsened. I attended out of hours doctor service. I was diagnosed UTI and prescribed a very strong antibiotic.
Today, I received a letter asking me to contact GP to discuss blood test.
Now, I am feeling so despondent. In fact, I have crime, because I do not know where to turn, who to believe, and worry, that I will lose trusting my gut instinct.
GP merely told me my tsh is now 4.57 (0.27-4.20). Bingo, I thought, that's why I am suffering horrible symptoms. Apparently not!!
GP told me, no action needed, because I am within range, or just out of range... oh, here we go...
I said, actually, thyroid UK.... believe tsh 1 or below, better??? My GP, very dismissive, we can keep chop n change dose, but will never get it exact, but you are within range...
Interestingly, she did not discuss FT3/4 results, I didn't pursue, as I felt, I WAS BEING TOLD! It would have been futile, and like begging for understanding.
I did ask, is it about time I saw an endocrinologist? Absolutely no discussion, GP glossed right over question, telling me I should not have symptoms as my results are within range.
My weight has ballooned. I am low in mood. Constipated.....on n on... the symptoms are getting worse...
To add insult, to injury, my GP told me, with a tsh of 4.57 I should not have untoward symptoms, as I am within range...
My own belief is, the swing from tsh 0.01 to tsh 4.57 in a matter of a few short weeks, is bound to have an impact on my symptoms.
But, I am left feeling what I think, what I experience, is not what is important, in diagnosing and or treating...
Now, I am unsure, should I begin adrenavive 11, metavive 11, as suggested by Dr P, (I would phone his office tomorrow but expect only receptionist would be available), stay on levothyroxine as GP says, and just shut up, and put up?
I would be so grateful for any advice, I value real life experience.
Thank you for reading.