Hypo for many years. Still symptomatic. Currently on 200mcg Levothyroxine plus 20mcg T3. Non existent TSH <0.01 mU/L. Endo wants to get my T4 & T3 up but proposes doing so by increasing T4 only. Not willing to increase T3. Recently confirmed privately I have the DIO2 gene plus high reverse T3 so I want to switch to T3 only as this is the only thing that will help me. I need to find a reliable source of Mexican Cynomel asap. Please PM me if you can help.
Most recent results:
TSH <0.01 mU/L (0.35-5.00 U)
Free T4 15.9 pmol/L (9.0-21 U)
Total T3. 1.6 nmol/L (0.9-2.5 U)
These results have been flagged up by the lab as **ABNORMAL**. Can't get FT3 done. There isn't even an option on the computer at GP for TT3. Has to be a special request.
Pretty sure I have Hashimoto's but has never been confirmed. I need to find a reliable source of Mexican Cynomel asap.
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Hyburn
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The DIO2 impairment does not mean you need to take T3 only. The 20mcg T3 you are taking with Levothyroxine should overcome poor conversion. You can reduce high rT3 by reducing Levothyroxine dose and increasing T3 dose for a while.
Your labs are flagged as abnormal because TSH is suppressed below range due to the high doses you are taking.
If you want antibodies and FT3 tested you can order your own blood tests via thyroiduk.org.uk/tuk/testin... Medichecks offer #ThyroidThursday discounts.
If members can recommend sources they will send you a private message. To read a private message: support.healthunlocked.com/...
Thanks @Clutter for your helpful response. Lab used to say 'Low TSH unlikely to be clinically significant in the absence of toxic symptoms'. I don't know why their view has changed. Endo I see now says she would not have put me on T3 but so far is still keeping me on it but won't increase the dose. I don't think she should increase my T4 in the light of my results.
Have been gluten free for ages thanks as coeliac disease also runs in the family. I am prescribed Vit D by GP as it was low, folate is low end normal, ferritin was ok and Medichecks active B12 test showed it was too high and recommended to check liver and kidney function which were okay. Been meaning to pursue getting antibodies checked. Will ask endo about this next appt. Have vague memory of being told it doesn't matter as I am being treated for hypothyroidism anyway!!!
Medics ignore Hashimoto's, patients on the other hand find they need to understand it, to get to root cause
What level is vitamin D and are you only taking 800i. If so likely to still be too low. Vitamin D level needs to be at least at 70nmol but around a 100 might be better
Coeliac often low in magnesium. Also good idea to take magnesium if supplementing vitamin D
I have the Dr Izabella Wentz book 'Root Cause' though it is a while since I read it.
Vit D has not been tested since I went on to Colcalciferol 800IU in April 2016. Lab refused to do it as it was a 'repeat request' and said previous result was valid for 340 days!!!! It was 26nmol/L on 27.04.16 (I posted this on a message recently - think it was to you but not sure). Can see I am going to have to rattle a few cages from now on.
On 09.02.15 my Serum Vit B 12 was 617ng/l (200-900); Serum Folate 5.1 (3.1-20); Serum Ferritin 140ug/l (15-200). As these were done more than two years ago I will be asking to have them done again.
Recently had Medichecks look at Active B12 which was 194.8pmol/L (25.10-165) This was flagged as too high and they rec decreasing dose if I was supplementing and, if not, to have FBC and liver function checked which I did and all came back normal. (I have said this before too but did not give the actual figure for B12.)
If you can't get GP to check then suggest you use Medichecks again
Just Vitamin D on its own, then £28 test is cheapest
I had similar too high B12, (never supplemented) but had vitamin D deficiency. When I started high vitamin D supplements, few weeks later was getting increasing peripheral neuropathy (due to low B5)
Do have some tingling in fingers and toes from time to time so will look into this SlowDragon. Thanks for the input. Will need to make lists and lists of things to do.
Was previously treated for low stomach acid & leaky gut & took HCL supplements & digestive enzymes for some years but gave up after a while. Am currently taking kefir, kimchi & sauerkraut to help with gut biome. Have poor digestive system & been diagnosed with IBS. Coeliac blood test was negative (I was on gluten at the time) & dr refused to do endoscopy despite the fact my sister is coeliac & I have symptoms per NICE guidelines for further testing.
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