I'm still quite new to this as I was only diagnosed in Feb this year with a tsh of 147 😳 I have Hasimotos thyroiditis
Anyway since then I have been gradually getting better and am currently taking 150mcg levothyroxine and all the vitamins that you lovely people have recommended. All results for b12,Vit D,folate,iron etc are all now towards the top end of normal so no worries there and I have a fantastic GP who even though my last tsh was 1.1 and t4 towards the top end he increased my levo as I am still symptomatic. He too agrees that I should aim to be as close to the bottom of normal as possible, this was 3weeks ago.
My GP has requested my T3 be tested but the labs won't do it unless it's ordered by a consultant 😡 but as I have improved vastly on just T4 I'm not worried about not converting to be honest.
I've been totally gluten free for about 8 weeks now.
Over the last few weeks though I've really gone backwards, my feet and ankles are very swollen for which I've been given furosemide, still very overweight and can't lose it even though I'm trying, I'm so tired again, I could quite easily sleep all day (but as I work full time I don't!) I tingle all over, mouth and nose are numb, I ache every where, banging headache etc,etc..........
I've had the basic bloods done for lupus as I also have a photosensitive rash on my face and they where negative. All my most recent bloods have come back ok with the exception of my EGFR(kidney function) being just under 60 so I'm having that repeated on Tuesday and back to the GP Thursday. I swear if I go much more he will get a restraining order out!!!!! I'm very thankful that I have a good pro active, forward thinking GP who I can't fault for 1 minute after the trouble some people seem to have.
Any ideas? Is it normally to go backwards? I did have guillaine barre syndrome which is another rare autoimmune condition about 25 years ago so clearly my immune system doesn't like me
Thanks Emma x