In need of advice: Hi guys, Many thanks for this... - Thyroid UK

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In need of advice

Yulia2010 profile image
9 Replies

Hi guys,

Many thanks for this forum and your posts and replies. I read it every day and can't imagine what I would do without it:)

Feeling "under the weather" (tired, sleepy all the time) and having put quite a lot of weight, which wouldn't shift, I'd like to give T3 a try.

Could anyone please PM me any reliable sources where I could get it.

Many thanks in anticipation to those who provide this very valuable information for me.

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Yulia2010 profile image
Yulia2010
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9 Replies
SeasideSusie profile image
SeasideSusieRemembering

Yulia - have you done anything about optimising your vitamins and mineralsl you posted two months ago? No thyroid hormone will work unless they are optimal, they are the building blocks, and need sorting first.

Your Vit D was very low, but you didn't provide information about ferritin, folate and B12. Have you had these tested? Low Ferritin can cause fatigue, low B12 can cause an awful lot of symptoms.

Are you still gluten free and are you supplementing with selenium for the Hashi's?

Even though your TSH was nice and low, your free Ts were very low but you were converting, just needed an increase in Levo.

Don't jump in with T3 until everything else is optimised and then if you're FT3 is still low with a decent FT4 that is the time to consider T3.

Yulia2010 profile image
Yulia2010 in reply toSeasideSusie

Hi SeasideSusie, thanks for your reply. At the moment I take liquid vitamin D (which I have been taking now for over a year as the last vitamin D test was even lower), selenium and ferrous sulphate (even though iron levels were within the normal range during the last test) as my hair started to fall out a lot. Two weeks ago I finished taking vitamin B complex, which I also had been taking for 2 months.

With gluten free diet, I must admit, I haven't been so consistent, but will try to stick to it more rigidly now. I do think I will benefit from T3 as I can see how it has helped quite a few fellow sufferers now.

A few weeks ago I was feeling so tired that it really scared me, so I started taking L-Carnitin but am now unsure if this is a good thing to do with Hashi.

So, I am taking quite a few things at the moment but feel only marginally better(

SlowDragon profile image
SlowDragonAdministrator in reply toYulia2010

Get full Thyroid and vitamin tests before you decide on a next step. Good vitamin levels are essential and we can not be almost gluten free.....it's has to be 100%

How much vitamin D are you taking? When was it last checked?

What about magnesium and vitamin K2, these are recommended when taking vitamin D.

Don't take any supplements with biotin in (like a B complex) before a blood test. Should stop 3-4 days prior

endo.confex.com/endo/2016en...

Yulia2010 profile image
Yulia2010 in reply toSlowDragon

Hi SlowDragon, many thanks for replying. I take 10 drops of liquid vitamin D and so far it still hasn't brought my vitamin D levels to normal. As it is liquid, I was told it's OK just to take it with milk or milky tea. I am about to start magnesium as well but never thought of vitamin K2. Will look into it.

SeasideSusie profile image
SeasideSusieRemembering in reply toYulia2010

Yulia - if your Vit D level lowered while you were supplementing, then I imagine you weren't taking anywhere near enough. "10 drops of liquid Vit D" doesn't tell us how much you are taking.

In your last thread two months ago you said your Vit D level was 24.99ng/ml. I posted the link to the Vit D Council's table of how much D3 to take to raise to certain levels. As the recommended level is 40-60ng/ml, the table recommends that with your current level of 24.99 you should take 5800iu daily to achieve 60ng/ml. It's all in that post healthunlocked.com/thyroidu... along with information and links about the important cofactors needed.

As far as your iron levels are concerned, it's not the fact that they are "within the normal range", it's where in the range you lie, you need your level to be optimal.

With your B Complex, as with all vitamins and minerals, you don't stop them after a certain amount of time. If you reach optimal levels then you go onto a maintenance dose to keep them there. But as for B Complex, it is a general supplement for thyroid and adrenal health (as well as helping folate level) so you should continue it all the time. Also Vit C supports adrenal health as well as being essential to take alongside iron tablets to aid their absorption.

There isn't much hope of any thyroid hormone working until all your vitamins and minerals are optimal so that's

Vit D - 40-60ng/ml (or 100-150nmol/L)

B12 - very top of range, even 900-1000 for us hypos

Folate - at least half way through range

Ferritin - half way through range

I also asked if an iron panel had been done, and a full blood count would be useful to see if you have iron deficiency anaemia. This would account for your fatigue.

I doesn't matter how T3 has helped anyone else. If you don't need it and you take it then it will cause problems. Nothing will help until you optimise nutrient levels and got your free Ts up into the upper part of their ranges. This is your problem:

FT4 12.34 (10.80-22.00)

FT3 3.92 (3.10-6.80)

You are undermedicated, more Levo will increase your FT4 and your good conversion means that FT3 should increase also.

Yulia2010 profile image
Yulia2010 in reply toSeasideSusie

My endo told me recently to actually reduce the dose of levo to 37.5 but I was feeling really bsd and went back on 50. As for vitamin D, I started taking it when my levels were 19 and followed endo's recommendations to the letter. My liquid vit d is a Russian make as I get all my meds from there and it's not quite the units you mention. It's an oily solution 0.5mg/ml. 10 drops is quite a high dose. Previouly I was taking only 4 (till the last test) and it increased my levels but not enough.

Thanks about the info about vit b, didn't know you had to take it all the time.

Yulia2010 profile image
Yulia2010 in reply toYulia2010

Forgot to say I did fbc in April and am certainly not anaemic. Which is probably why taking iron tablets doesn't stop my hair falling out.

SlowDragon profile image
SlowDragonAdministrator

Suggest you get vitamin D tested - cheap option is vitamindtest.org.uk - £28 postal spot test

You may well need loading dose. Many of us with Hashimoto's need hefty dose to increase levels. "Better You" mouth spray is widely available, avoids the gut and comes in 3000iu or 5000iu dose.

hypothyroidmom.com/92-of-ha...

H pylori is linked as a trigger for Hashimoto's

thyroidpharmacist.com/artic...

hypothyroidmom.com/hashimot...

scdlifestyle.com/2017/04/gu...

The gut connection would suggest you really need to retry gluten free and stick at it.

Like you I find the thought of dairy free tough, but if it helps it surely would be worth trying

Yulia2010 profile image
Yulia2010 in reply toSlowDragon

Thanks for your suggestions. I used to have H pilori and stomach ulcers and now regularly get tested for it. The last few tests were negative.

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