Feel like death!: Hi everyone. I was diagnosed... - Thyroid UK

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Feel like death!

Joolsminxy profile image
7 Replies

Hi everyone. I was diagnosed with graves disease 4 years ago. Trailed 2 years of carbimazole, then was told I needed my thyroid removed. I was prescribed 150mcs of thyroxine on discharge but I cut it down as contraindications said people over 50 should not take such a high dose. My gp said it was fine and to go back on 150. I'd not had my blood check for about a year as I moved house and new gp said it wasn't necessary. I had then done last week as I feel dreadful and don't want to continue to live like this and was told to cut down to 125mcs. I'd rather try ndt of I can source some as I've felt rubbish last 2 years and can't go on! Results below hopefully!

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Joolsminxy
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humanbean profile image
humanbean

Your results haven't appeared. Were they in a photo?

If you want to add them, click on the v in a little box underneath your post, click on Edit, make your changes, then click on Post.

Joolsminxy profile image
Joolsminxy in reply tohumanbean

Yeah that's what I tried, didn't work. Ive wrote them below instead. Thanks.

Joolsminxy profile image
Joolsminxy

Looks like photo did not attach! Results are:- tsh level 0.01 mu/L (0.55-4.8)

Serum t4 21 pmol/L (9.0-23.0)

amala57 profile image
amala57 in reply toJoolsminxy

Do you know your Ft3 result?

Joolsminxy profile image
Joolsminxy in reply toamala57

No they don't do t3 :(

amala57 profile image
amala57 in reply toJoolsminxy

Well thy usually do if tsh is suppressed. I'm the same as you. I had rai 2 yrs ago and feel like i can't go on. I've started on t3 but it's causing problems as my reverse t3 is high. I'm learning so much. I think you have to try T3 or ndt but if your iron/ cortisol is not good it won't help. The "ftpo europe/uk" site will help you more. I'm just on there since yesterday. Realize I have a mountain to climb! Please feel free to pm me if you need more help. Not that I can help much.! But I will share with you what I've learnt. 😊

Joolsminxy profile image
Joolsminxy

I think my gp thinks reducing my thyroxine will be enough!

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