ME Association Petition to Revise Current Guidelines

[lynmynott]

The ME Association is running a petition - The NICE guideline for CFS/ME is not fit for purpose and needs a complete revision - because The NICE guideline for CFS/ME is currently undergoing an official review with arecommendation before the committee for no action to be taken.

Please support the ME Association in this petition: tinyurl.com/yc3s7nly

[Kitti1]

Glad you've seen that as forewarned is forearmed. As it says in the second paragraph Quote -

As stakeholders, the ME Association believes that the current guideline is not fit for purpose and that we are not being afforded a fair opportunity to help produce a better version.

I wish you a better hearing with NICE

[Marz in reply to Kitti1]

I know of someone with Lyme and was making a noise in high places. She was invited to join NICE in the Lyme discussions. She thought it was because they could keep her under control by keeping an eye

[nightingale-56]

I have already signed and shared this from another source.

[lola1956]

I've already signed