Patients Association view on NHS England's plan... - Thyroid UK

Thyroid UK

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Patients Association view on NHS England's plan to withdraw some drugs and medical aids

Clutter profile image
8 Replies

Patients Association: new drug rules are in many ways sensible, but NHS England is in danger of leaving patients behind in its rush to implement them

patients-association.org.uk...

Please complete the NHS England Consultation document at the bottom of the link and sign the ITT Campain petition change.org/p/itt-campaign-g...

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Clutter
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8 Replies
amala57 profile image
amala57

I spoke to a guy at the Patients Association this morning. He was very nice and helpful. He suggested I write to my local ccg and cc the email to the PA. helpline@patients-association.com He also suggested that I ask in my email what alternative drugs are available if T3 is withdrawn. (Not including levo as I cannot take it). He said they would have to get a clinical view on this. He also suggested that if there are a lot of complaints re removal of t3 the media may get involved.

So I would encourage everyone to contact the patients association and to also write to their local ccg.

It was easy and quick to get through on the phone to the PA.

Clutter profile image
Clutter in reply to amala57

Amala57,

Excellent. Thanks for the suggestion.

JGBH profile image
JGBH in reply to amala57

Thanks for suggesting ways in getting the treatment that we all need and deserve.

shaws profile image
shawsAdministrator

If I complete the Petition I don't want my name posted but my comment. It doesn't appear to give me the option as it states (and a box to tick or not):

Display my name and comment on this petition

Clutter profile image
Clutter in reply to shaws

Shaws,

Most petitions post first name and first letter of surname when you post a comment. Alternatively make up a name.

amala57 profile image
amala57 in reply to shaws

Maybe you could just put "anonymous " in the name box? Or use a false name?

Lentil61 profile image
Lentil61

Hi Clutter

I clicked on the change.org petition link but can't see anywhere to sign.

Pete

Clutter profile image
Clutter in reply to Lentil61

PeteRad,

Should be top right of the photograph change.org/p/itt-campaign-g...

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