Hi all, I have been struggling with hypothyroidism for around 5 years where I have nearly every symptom but also been putting weight on.
I was started on Levothyroxine and increased twice then seen an endocrinologist who I convinced to try me on T4 and also some T3. Still didn't feel better until I was just put onto T3 alone. I am only on 10mcg twice a day and initially after being on it for a bit I actually started to feel better. I had an appetite I had a bit of libido as well as hair stopped falling out so much and I could also think a bit clearer. Constipation eased and I don't feel the exhaustion as much.
Now however I seen to have plateaued and my endocrinologist said she would not increase on T3 dose because she only has a couple of patients on it plus maybe the cost to the Nhs too.
I feel so desperate I went to my Gp who told me oh you are really overmedicated because my TSH is now 2.74 but she then added that on T4 was in range but very low but didn't say what it was but continued to say I think that maybe you are not converting properly. I was upset and couldn't think straight that day so came away feeling worse than when I went.
I feel so desperate that I am looking for blood tests that won't cost me a fortune but I think I need rt3 tested but not sure.
So I am asking advice as to what I do next and wondered if there is actually any doctors out there that will treat me holistically.
I live in Coventry but would be willing to travel anywhere to try and get a halfway normal life.
Feeling hopeful that one of you lovely people would be able to advise me.
Kindest regards Deb xx