THYROID EYE DISEASE!
HELLO,I have had TED for over 20 yrs i hav a mild to slightly moderate case in 1997 i had RAI and then in 1999 my eyes got a little better but still bad i wore non RX eye glasses just to hide behind so then i thought i would have the OD surgery back then i chickened out and so ove the next several years my eyes got even a little better, but needless to say still disfiguring and all of a sudden my left eye is starting to bulge or feels like its open more and looks that way and its mostly my left eye so i went to a ocular plastic specialist down at UIC - chicago,il and i may have surgery just on left eye not right my eye measures 22 or 23 on left and right is 17 and that eye does not bother me so he wants to just perform a fat removal instead of bone on left eye so we will see going for CT scan next week, now i just had thyroid labs the other day and this time i asked for antibodies test or TPO and the specialist wants T3 T4 free and total now ive always just been on levothyroxine 100mcg i do not currently have an endo anymore need to find a good now, i just get my labs checked by my primary dr labs are normal thats what they say and i have always felt really good my eyes are stable even though one is bigger and noticable thank God for makeup!! i just have not been feeling well lately and my eye is bigger so something is going on sorry for being so chatty but i am nervous about possible surgery but i know i am in the right place for this and i let the lord handle this He brought me to it he will get me through it!!! thanks for listening, there is one more curiosity i have, has anyone experienced the Antibodies attacking the eyes again after having the OD surgery and then there eyes started to bulge and retract again??