Anyone had these symptoms ? : Feeling sorry for... - Thyroid UK

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Anyone had these symptoms ?

Montheone profile image
Montheone
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Feeling sorry for myself πŸ™„- spent this lovely sunny weekend sleeping (14 hours a day ) or awake with breathlessness and back pain and catarrh in sinuses - antibiotics don't seem to be helping - anyone else had this? - my second time?

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Montheone profile image
Montheone
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23 Replies
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deepeabee profile image
deepeabee

Yes, I have back pain that moves to my hips or further up my back. It usually starts lower left but could be anywhere. Had catarrh for years but it got better until recently when a lot of symptoms have returned.

bluebug profile image
bluebug

Did you have the tests suggested in answers to your prior post?

If so post the results and ranges as your symptoms indicate under medication and/or vitamin and iron deficiencies.

Montheone profile image
Montheoneβ€’ in reply tobluebug

Yes I asked for full range of tests and Doctor agreed but testing only did the following πŸ™„

Serum free T4 level - 11.5pmol/L range 7.0-16 serum TSH level 0.847 miu/L range 0.38 -5.33

bluebug profile image
bluebugβ€’ in reply toMontheone

Then you are going to have to save up and do them privately. There is little point in taking a load of supplements if you don't know whether you need them and the dose you need them at.

And if you are then found to have a severe deficiency in anything e.g. below the lab range you can go back to the doctor and politely ask them why s/he didn't do the tests as you showed symptoms of having issues.

BTW my sinus issues were and are dreadful when I was severely vitamin D deficient and when I have sub-optimal iron levels.

jackiehyland profile image
jackiehyland

Yes all the time I have antibiotics at least 5 times a year inhalers 3 on my prescription every month always feel unwell and breathless and it's worse in the winter it's like a sensation of drowning fighting to catch your breath the nhs class it as panic attacks they just havnt got a clue and it's bloody scary and I'm convinced it's down to low body temperature .

Katepots profile image
Katepotsβ€’ in reply tojackiehyland

Make sure you are on a good probiotic with multi strains if you are having multiple lots of antibiotics. Really need to keep your gut and microbiome as healthy as possible.

Montheone profile image
Montheoneβ€’ in reply toKatepots

This is the first lot of antibiotics I have had in 2 years - last bout of this which GP thought a virus I didn't have any but lasted the whole month of April πŸ™„ Yes am a Neals yard consultant so have good probiotic plus fibre supplement

Katepots profile image
Katepotsβ€’ in reply toMontheone

Perfect! πŸ˜€

HLAB35 profile image
HLAB35

Hello, Firstly, I think this requires further investigation. Some heart problems actually manifest themselves as getting out of breath a lot - no amount of antibiotics or inhalers will help. I'd check with your doctor for a second opinion. Secondly, you must address this sinus problem in a novel way - decongestants can cause anxiety and tachycardia, so they're no good; the best thing I've found is by increasing the strength of my stomach acid by taking Betaine HCl with meals - weirdly (there is actually some science to back this up) it prevents congestion. Low stomach acid makes iron absorption nigh on impossible - even with supplements - so my guess is that your stomach acid levels are very very poor (probably as a result of an under-treated thyroid).

Millea profile image
Milleaβ€’ in reply toHLAB35

Agree with everything you have said. Also wanted to add that antibiotics destroy or reduce the number of healthy good bacteria in the gut. My daughter has had to be on antibiotics several times over the past two years and I have got her to take a weeks course of probiotic powders as soon as she finished the antibiotic course.

Montheone profile image
Montheoneβ€’ in reply toHLAB35

This would make sense as I take a lot of supplements - multi vitamin and mineral etc etc

Montheone profile image
Montheoneβ€’ in reply toHLAB35

What is Betaine HCL?

HLAB35 profile image
HLAB35β€’ in reply toMontheone

It's taken as a digestive enzyme (sometimes with Pepsin) with meals. Makes a world of difference to those of us with low thyroid who are not being treated optimally. The pH of the stomach should be vey low (around 1.5). We produce a lot of mucous to protect our stomach from its effects. Low pH triggers the valve to the oesophagus to close and the valve to the duodenum to open enabling food to pass on through. If the pH is too high (a) the valve to the oesophagus can fail to close, causing acid reflux as our oesophagus isn't protected with mucous (b) the stomach fails to absorb specific minerals and vitamins (usually the bigger molecules like B12) and (c) the valve to the duodenum takes longer to open, so the food ferments in the stomach rather than gets digested. The fermentation is a combination of yeasts and bacteria (which would otherwise be destroyed by low pH) getting a chance of life and the toxins they give off.... it's really bad news and interestingly is linked to sinus issues.

T3 increases stomach acid - I'm actually seriously considering switching to NDT because I'm only a so-so converter.

My husband had the same experience with inhalers (Ventolin), they became increasingly ineffective over time and a change of brand made no difference. What I found out is that Ventolin will rob the body of nutrients, namely Calcium, magnesium, potassium and phosphate - which are all essential in maintaining open airways and functionality.

Antibiotics (as you probably know anyway) will cause destruction of the beneficial bacteria in the intestinal tract and will reduce the uptake and/or deplete B1, B2, B3, B5, B6, B12, folate, biotin and Vitamin K2. Probiotics to recolonize the good bacteria might be a good idea in addition to supplementation.

Instead of using antibiotics, you might find colloidal silver works just as well.

Justiina profile image
Justiina

This might be useless but have you tried inhaling steam? If it's dead bacteria that is clogging sinuses as it dries just antibiotics might not help. Infection/irritation keeps coming back.

Inhaling steam moisturise the membrane and let the stuff come out.

Whenever I have common cold my sinuses get so swollen and the pressure is huge on my forehead. Inhaling steam works for me, I can feel it removes the dead bacteria and I can actually hear it as well when blowing my nose , yuk.

I inhale steam 3 times a day until the pressure goes away and can feel sinuses are not swollen anymore.

Montheone profile image
Montheoneβ€’ in reply toJustiina

Thank u - yes GP advised steaming and have done it with organic TEa tree oil but not often enough I think

Justiina profile image
Justiinaβ€’ in reply toMontheone

As a finnish I can go to sauna every day and it's not enough to get full benefit so I inhale steam at least three times a day , more if needed.

I have had sinuses problems since the age of eight. I have had two major operations which helped for about 15 or more years. Since having my thyroid removed I keep getting bad bouts again. I have been online trying to find a cure rather than the antibiotic route. If I feel it coming I take one dessert spoonful of honey first thing then hold something warm onto my sinus I use a cup of hot water. I also use Olbas oil daily especially at night on a piece of cotton wool and then sniffed regularly helps. All these things have helped me.

In April this year I had antibiotics for it and it left me with ulcers all over the roof of my mouth, awful. That's when I decided to take the natural route.

HLAB35 profile image
HLAB35β€’ in reply to

I have had sinus issues too which caused me to have insomnia long before I found out about thyroid problems. Going gluten free has helped enormously, so has taking things like Betaine HCl with meals and when I have a cold I take riboflavin, zinc and vitamin C lozenges during the day. A low-dose of niacin works well at night as it increases stomach acid (thus reducing congestion) and it switches off the internal voice that keeps you awake. I take it with some magnesium and an evening snack (granola, banana and almond milk) at about 8 pm - gives it time to kick in and also, prevents niacin flush. I used to take NAC - which did a similar job, but I find that niacin is more calming. It's worth a try and a lot less aggressive than inhalers, antibiotics and decongestants! Some inhalers also mimic cortisol which is terrible for anyone with adrenal / thyroid issues. Doctors should be more careful how they prescribe them.

Montheone profile image
Montheoneβ€’ in reply toHLAB35

Thank u - have a salt water inhaler but the other one wasn't on prescription doctor just advised me to get it over the counter

Taking a lot of supplements already but will try Betaine HCL with meals

HLAB35 profile image
HLAB35β€’ in reply toMontheone

I was worried you may be on strong asthma inhalers - salt water sprays are pretty benign. If you're on a lot of supplements it may be worth reviewing their effectiveness. I'm not a fan of multi's because they never seem to have things in the right ratios or most absorbable forms for people with low thyroid.

Montheone profile image
Montheoneβ€’ in reply to

Thank u have ordered some Olbas oil and will try the honey - will finish antibiotics as half way thru now but haven't taken any for about 2 years now so hope I don't get this reaction πŸ™„

Last time I had this it lasted a month so was hoping to speed up recovery time - don't usually suffer with sinuses

Hi I agree, Doctors prescribing more and more sprays etc.etc. I am 70 years old, so have suffered for over 60 years. I did notice that when I was pregnant I became more congested when having anything milky. My sinuses are malformed so it's a life long problem. It's weird but I don't appear to catch normal colds but I can feel the heat start up and usually it forms in only one nostril since my last operation. I have written down your list of things to help. Thank you.

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