Medication advise

Hi,

I have been on levo for approx 2/3 years (150g) and my doctor is refusing to test anything other than my TSH levels, which I am told are now ok. - I ask every time to have T3 tested etc. and he won't. I constantly feel drained/tired with NO energy at all and it's starting to really get me down, I could sleep at any point of the day...! I keep myself reasonably active but whatever I do I am so so tired.

Has anyone every had private tests done that show you need something else, and then been able to get it prescribed? Or has anyone every self supplemented with a T3 supplement and felt better?

Any advice appreciated!

Thank you.

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9 Replies

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  • I also have Hashimo

  • Hodgson,

    Many members order their own thyroid blood tests when GPs will only test TSH or TSH and FT4. You can order your own tests via thyroiduk.org.uk/tuk/testin... It would be a good idea to order a test which includes TSH, FT4, FT3, thyroid antibodies, ferritin, vitamin D, B12 and folate from Blue Horizon or Medichecks.

    It is very difficult to get T3 prescribed whether or not you need it. Many members are self medicating T3 or NDT for this reason.

  • Thank you for your reply, if it turns out I do need T3 - where can I buy it from? I am worried I order something I shouldn't online ....

  • Hodgson1994,

    If it turns out you need T3 write a post asking members to PM you sources where to buy online without a prescription.

  • Your GPS needs to learn that unless

    Ferritin

    Foliate

    B12

    Vito d3

    Are all at least halfway in their ranges your body simply cannot utilise the level and convert it into the T3 that every body cell needs to function

    Much of the problem with tests is the NHS labs won't test t3 if TSH is OK even if it's asked for and even in patients who have central hypothyroidism where TSH can never ever be used

  • Thank you for your reply

  • Mostly it's the NHS labs refusing to test t4 and t3

    Even in patients who have CENTRAL hypothyroidism where TSH is utterly useless

    Email Louise.Roberts@thyroiduk.org.uk for a copy of Dr Tofts PULSE article and give that to your gp

  • You say you have Hashimoto's. So very likely to have low vitamin D, folate, B12 or ferritin. If you have results of tests post them here.

    If you haven't, then like 100's of us you can get tests via Blue Horizon or Medichecks.

    Do you have any gut symptoms, have you tried strictly gluten free diet? Many of us find it significantly improves symptoms, and may slowly lower antibodies. Others find other food intolerances, e.g. dairy

    See Thyroid UK main site for more info

    Also The Thyroid Pharmacist (Izabella Wentz) website for masses of info about Hashimoto's

    The Thyroid Secret by same girl on you tube

  • I saw a Naturpathic doctor and FINALLY got the blood work I needed and was diagnosed with Hashimotos Thyroiditis although my TSH always tested "normal" to my regular dr.

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