Daughter in ICU: For those of you that have given... - Thyroid UK

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Daughter in ICU

Reglivmama profile image
20 Replies

For those of you that have given me helpful info since I have signed on, here is my update. After a 24hr treatment of potassium iodine, my daughter went into horrible thyroid storm. Her T3 is at 29 and her resting heart rate was at 177. She has been admitted to ICU for constant monitoring and IV beta blockers. They are now giving steroids and another med to try and bind to the hormones and flush them from her body. Her heart rate is down to 125 now with the constant IV but immediately increases even when they are just changing the bag. Her calcium levels are elevated as well. I'm sure this will turn around in the next 24-48 hours but is very stressful. SHe is so jittery and her mind is just cluttered. Asking for prayers and good thoughts for her for a speedy recovery from this storm. Thank you

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Reglivmama profile image
Reglivmama
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20 Replies
Justiina profile image
Justiina

I assume she had toxic nodules if she had that awful reaction to iodine? So those nodules have escaped from control of TSH and iodine just triggers more harm.

I hope things settle down soon! Sounds very scary.

Boohbette17 profile image
Boohbette17

Oh my!! Count on prayers from me for her & you! I've much unrelated to thyroid but nontheless I know how these ICU situations are like. HUGS!!!! 🌺😇

helvella profile image
helvellaAdministrator

I wish all the best.

437jd profile image
437jd

Hi I've had experience of a loved one being in icu I know how difficult this time is for everyone involved. Much love x She's getting the best care there is xx

volley profile image
volley

all the best for you and your daughter

Skyebeardie profile image
Skyebeardie

Thinking of you and your daughter, hope she is on the way to recovery 🙏

wellness1 profile image
wellness1

Thinking of you and your daughter. I hope her situation turns around soon. She is so fortunate to have you by her side. Take care.

Fruitandnutcase profile image
Fruitandnutcase

Best thoughts and wishes coming to you both. I can only imagine how hard it must be for you. x

Clutter profile image
Clutter

Reglivmama,

You must be beside yourself. I wish your daughter a full and speedy recovery.

richard123 profile image
richard123

🙏 for your daughters speedy recovery x

Cymraes profile image
Cymraes

Sending love and hope she's stable soon xx

shaws profile image
shawsAdministrator

She is a poor soul right enough and it is an immense worry for the whole family.

Thankfully she was in hospital when it happened.

We look forward to updates that she is improving quicky.

nightingale-56 profile image
nightingale-56

I wish your daughter well.

lucylocks profile image
lucylocks

I wish your daughter well and hope she improves very soon.

SeasideSusie profile image
SeasideSusieRemembering

Thinking of you and sending best wishes for a full and speedy recovery.

humanbean profile image
humanbean

Hoping your daughter recovers quickly and is home safe and well very soon.

I think I'm right in saying that it was a doctor who suggested your daughter should take potassium iodide. This is a very odd suggestion to make (in my opinion) to someone who has an overactive thyroid. I would suggest finding another doctor.

Foxie1234 profile image
Foxie1234

Hi Reglivmama. I am sorry to hear your daughter has experienced a thyroid storm.....Last year I too had a thyroid storm. It was very scary....my pulse rate went up to 185, my T4 was over 90 and it felt as if my heart was coming out of my chest. I experienced awful delirium, I shook violently, my muscles ceased to work and I thought I was never going to get better.....I was given iodine and within 48 hours could feel it working. Amazing stuff! I am sorry it did not suit your daughter. I was in hospital for 3 months, tried all the drugs and treatment to try to save my thyroid but non worked so I had a thyroidectomy last June and a year later am feeling much better still get a bit tired but put that down to old age I am 65...my levels are still a bit high but dr tweeking them. My husband thinks my body must be made of good stuff as this was the 11th operation I have had and he thought this might finish me, but with the help of my Endocrinologist and his clinical knowledge (I was a lucky one!) and the Drs at the hospital I am now home and enjoying my first grandchild.

I will pray for your daughter, she will come through this, it takes a long time, but I'm sure she will get there.......

I send hugs as that helped me last year.....

Reglivmama profile image
Reglivmama in reply toFoxie1234

Thank you for your support. The endocrinologists have said she is just extremely med resistant and as soon as they can get her levels down they will surgically remove. She is just a rare case that medical normal regimes just don't work well on her. Hopefully she will be moved today from ICU to IMC. We are still looking at a minimum of 5 more days in hospital depending how it goes.

helvella profile image
helvellaAdministrator in reply toReglivmama

Thank you for taking the time and making the effort to let us know.

OMG, I'm sending lots of prayers your way from Virginia in the U.S.A.

I'm also praying for the U.K. in general with all that is going on! When

will this horror stop?

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