I was diagnosed about 5 years ago when I was 14, i had all the usual symptoms and totally lost my voice. It took them a while to diagnose me but when i did i started off on 125 mg and it has never changed. However i always have problems with it swelling in my throat. I am normally short of breath walking up stairs and any exercise or even daily tasks and sometimes it feels like my chest and heart is going to burst. My skin and hair are so dry and my hair falls out a lot. I also have really started to struggle with anxiety and depression out of nowhere. I get a lot of problems with losing my voice and coughing up green hard mucous. I am only 19 years old and i am not overweight, i was regularly fit until this all occurred and it keeps getting worse and worse. I have been back to the doctors on many occasions who always tell me my thyroid is swollen but my bloods are normal? i haven’t seen a specialist in a couple of years however lately I have really been struggling due to the constant weight gain and sadness. I have started to research which i know isn’t always good and have come across myxoedema hypothyroidism? does anyone know anything about this? i am showing all the symptoms and i am really worried.
Sorry for such a long message.
Charley
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charleywalker_
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It sounds as though you may be undermedicated. Can you get hold of your most recent thyroid results and ranges from your GP receptionist and post them in a new question for advice? Ask whether thyroid peroxidase antibodies were ever tested and if so what the results were. If you've had any blood tests for ferritin, vitamin D, B12 and folate include those too.
Myxoedema usually describes the swelling of the skin caused by mucin and water retention but is sometimes used to describe severe hypothyroidism.
When doctors say 'fine' it usually means the results are in normal range and as the ranges can be very broad there is often wiggle room to adjust dose to optimise thyroid results within range.
Post the results in a new post because updates are easily overlooked and missed.
I think it best if you get a brand new blood test and say you've taken advice from the NHS Choices Thyroiduk.org.uk about hypothyroidism.
This test has to be at the very earliest possible, fasting (you can drink water) and allow a 24 hour gap between your last dose of levo and the test and take it afterwards. This allows the TSH to be at its highest as GPs usually adjust due to the TSH alone. Ask if he can do TSH, T4, T3, Free T4, Free T3, B12, Vit D, iron, ferritin and folate. He or lab may not do the two Frees.
Get a print-out from the surgery and post them with the ranges (ranges are important) for comments.
Thyroid hormones are needed from head to toe and the receptor cells need T3 which is the Active hormone. Levothyroxine is T4 and should convert to sufficient T3 to enable you to be symptom-free and feel well.
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