I have hashimoto's, don't appear to respond to T4 and suffer chronic, fluctuating, all-over pain. The past 3 days have been absolute hell, as they have been on and off for a few weeks. I'm currently taking NDT and increased my dose about a week ago. I'm wondering if that has anything to do with the increased pain or the fact I (may) have a cold and am reacting severely to the virus. Is it usual for hashi's/hypothyroids to react badly to viruses? I need a hug actually x
Severe chronic pain: I have hashimoto's, don't... - Thyroid UK
Severe chronic pain
((hug)) about the best I can do I'm afraid sympathy and empathy... I have Fibromyalgia and Chronic Myafacial pain and know how chronic pain can grind you down
Infact have another ((hug))
Linda x
alibob63 Do you have blood results to post with ranges? Someone might be able to advise if you are under/over medicated. You might want to say what you are taking too, as it might be something in the meds that you are reacting to? Just a thought.
I had a lot of fibromyalgia and migraine and CFS which I believe was caused by t4 toxicity - I wasn't converting - too much swimming around in blood. Once stopped T4 all these symptoms went within a few days.
I hope you feel better very soon...With lots of Hugs.
Massive Hug
I do react badly when I'm very ill and thyroid labs drop considerably and take a few weeks to go back up. Feels like I need extra to cope with the illness but this is generally alongside a high temp/fever.
As mentioned, if you post your blood test reports, people can advise better whether there's things that need working on or even see if they suggest you are not responding to T4 etc etc. Not much we can suggest without these. I don't respond to T4 as can't convert so am on T3 instead so there are options if this is the case although hard to come by. Also, how long have you been diagnosed and what dose are you on
Would be worth getting your vitamin levels looked if not already - Vit D, B12, iron, Folate and post this as well.
I know how it feels, I was diagnosed with fibro and hypermobility and siatica and restless legs and water retention and had a lot of inflammation in my joints and so on etc etc. To be honest, everything used to hurt - actually my nose has never hurt much lol. All went away when went Gluten Free. May not work for everyone but quite a lot of hypothyroid people find it helps so if you're really desperate to try anything, might be worth giving it a go
Vit D deficiency with levels under 30 causes a lot of pain in my bones also - feels like they're bruised and very sore to touch.
Hug
Sending you a hug. My pain was terrible. Is it mainly joint pain? My endo said she had heard stories like mine but had never seen anything in the medical journals about it.
Awaiting blood results. Will post when I have them. I'm on 2.5 grains NDT and considering topping up with T3. I'm feeling much better now, so assume it was a virus. Thanks xx
Thanks for the support and hugs everyone. It helps, a lot! I get my blood results next week and Dexa results for bone density. I'll post them then xxx