I was diagnosed with over active thyroid & graves disease back in 2007 when I was 17. Then in 2011 drs decided best course of action was a complete thyroidectomy. Recovery took a while & I was in and out of hospital due to various things after the surgery. All was fine until 2015 I found a lump in my throat/neck, after MRIs & blood tests Dr said my thyroid was growing back. Again dr decided best action was another op to remove it.
Has anyone been through this? Dr has said there are some higher risks due to scar tissue. I'm worried I'll go through all this just to have it regrow again in another couple of years.
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Rhian2112
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They could do alcohol ablation to kill the tissue, instead of removing. My endocrinologist say that is what he would do if tissue started to grow back. Only way to totally get rid of tissue is removal/RAI.
Please watch this video. Especially around 13 minutes, pay close attention. Keep your thyroid if you possibly can. It never was the thyroid's fault you acquired Grave's. I too have Grave's and had my thyroid removed. I had no idea the options I could have had. You are getting that chance! Get educated and look at all your options. My very best to you.
Rhian. My first reaction is to say do nothing for a while. If your thyroid grows back and there is no disfunction, you are lucky. I wish mine would. The only fear is that whatever "attacked" the original one, will attack this new regrown one - but wait and see. Like Jackson says, you may have a second chance.
You are entering a realm of research upon which I do not think any work has been done at all. But read up on this subject, contact medical schools who can let you know who the researchers are. If they want to examine you, let them, but only "passive" observations, nothing destructive whatever. Don't let them take "just a tiny bit" to examine. Wait and see what you have (via ultra sound, MRI's (but not too many) etc. I think you are very lucky.
Please keep us posted on this one, I think this is fascinating.
I have vitaligo which is autoimmune & various consultants I've seen have said it was my autoimmune which attacked my thyroid resulting in graves disease and overactive thyroid I was really unwell no tablets could control it my pulse was constantly through the roof I had really bad heart palpations and so sweaty and anxious I fear if I leave it be I'll end up as I was,which wasn't a good place to be
Mine has grown again too after tt in aug 2008. My 2nd removal is 21st march. The 1st op damaged my vocal chord so im a bit worried about the upcoming op as if the good side is damaged i will need a trach tube in. Sarah x
i would wait, i refused surgery, meds, and radiation, even though it was recommended. i did not want to do any of those things as the meds also did not agree with me at all. i used R51 ( dr rekeweg and 1500mg cbd oil) my graves dermopathy and t.e.d also disappeared it took a bit but i don't want to do permanent stuff, when there might be another way. i also picked up some buggle weed tincture when i thought it wasn't enough. i don't use anything now, and its been 3 yrs of no medication. i am so far, just fine.
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