Frustration: hi! Been taking levothryroxine for... - Thyroid UK

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Frustration

clarence2013 profile image
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hi! Been taking levothryroxine for about 3 years and felt no benefit energy wise. Went to gp to tell them this and had blood tests (was hoping for some sort of magical change).... so they tested pretty much everything except the t3! I was so hopeful as she said I might be someone who has poor uptake....

I'm going to get my own private test if my gp won't so can people please tell me what to get? Free t3, t3 etc?

Is t3 expensive or something? Seems people have to battle to get it?

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clarence2013
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Clutter profile image
Clutter

Clarence2013,

You need TSH, FT4 and FT3 for thyroid levels. Thyroid peroxidase and thyroglobulin antibodies if you want to know whether you have Hashimoto's and haven't been tested previously. It can be helpful to have ferritin, vitamin D, B12 and folate tested too. Medichecks and Blue Horizon both do packages incorporating all of the above if required.

thyroiduk.org.uk/tuk/testin...

Mercury Pharma Liothyronine is the only T3 licensed for use in the UK. It costs £258+ for 28 x 20mcg tablets. 100 x 25mcg Greek or Turkish T3 costs €2-€3.

clarence2013 profile image
clarence2013 in reply to Clutter

Got a call from my gp re blood results. I queried why my t3 hasn't been done....she said she doesn't know any dr or endo that would prescribe t3.... why does this feel like a conspiracy?!

Clutter profile image
Clutter in reply to clarence2013

Clarence2013,

Your GP may not know any GPs or endos prescribing T3 but they do exist.

Not many GP practices can order FT3 and even if they can NHS labs often decline to test unless TSH is suppressed <0.03 as they're looking for evidence of hyperthyroidism not low FT3 in hypothyroid patients. I posted a link above which links to private blood testing companies.

clarence2013 profile image
clarence2013

I'm going to get a private test. Would they then say you're on a private pathway (i.e. Not able to access free NHS services after?)

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