Could I ask for people feed back on recent BH tests? All the nhs tests, I was told, were normal (one taken in a very stressful situation in A and E. One was a short synacthen test, which gp did and said was normal)
However, I paid for a BH saliva cortisol test, which came back as all 4 readings throughout the day as very low.... the morning one being very low. I've just got back a blood cortisol and DHEA test (the ACTH I had done was botched and arrived at lab unfrozen, so having that repeated next week):
Morning cortisol (blood) 161 nmol (166-507)
DHEAS. 2.2. umol (0.7-12.5 )
BH gp said this was a little low and suggested further testing. The same as was said for the saliva test...... how much testing do I need to have before I am offered treatment! Grrrrr
A retired GP I talk to on occasions believes I have stage 4 adrenal insufficiency (Entering Addison) but I don't seem to be able to get nhs interested. I'm very ill now. bed/wheel-chair-bound, severe muscle weakness , having myoclonus attacks. Referred to neurology, who are diagnosing (by exclusion) FND.... but I still feel I have an endo problem too.
Seeing an nhs endocrinologist (referred by A and E) on 17th May. I want to feel armed and ready. Checking in with you guys always gives me courage, plus it would be good to know if others with similar results, signs and symptoms, have been offered appropriate treatment. Thank you :o)