Hello so ny story starts 5 years ago...a lot of weight loss to the point of being so small and then never being able to put weight on. Until last year, my mum noticed I had a unusually large eye, I dismissed it. Then my monthly cycle went haywire and was so heavy and every 2 weeks, aftwr being referred to gyno dept I had what now turns out to be an unessary surgery, weight then started to climb up with no life style changes in last 5 years, looking back now migraines and forgetfulness and being not nice to people around me should have been a clue something was wrong. I was referred to opthamology dept about my unusual eye who listened to my story so far and asked for a TSH level to be checked. I did tell them at the time 5 females on my mother's side had thyroid issues but out of the 3 blood tests in last 10 years I've always been told my levels are normal. Anyway my TSH came back at 964! Apparently they stopped counting at this point. She diagnosed Graves due to my eye issues and weight loss even though that's not the case anymore. After speaking to my GP who is great he noticed my T3 levels had dropped each time I had a blood test but where still in normal range and asked for a blood test now as he was sure due to my abnormally high TSH I would be now underactive. Bloods came back and he was right (I didn't make a note of results) and after picing together last 5 years he confirmed 100% not Graves but definitely Hashimoto's. I'm gutted, it's been a 6 month struggle of confusion, 2st weight gain, migraines etc. Started on 50mg of levothyroxine and as of today I am now starting my 100mg dose. So much more to this whole story I can assure you but I suppose I'm looking on here for advice, help, what should I be asking at appointments and just to speak to those who are going through same thing. Luckily my employer is so supportive over all this!
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